Table 1.

Overview of first four years of patient involvement in the Fex-Can project

Patient involvement meetings	PRPs	Researchers^a
Half-day meetings on Saturdays, including lunch	10 former patients 2 mothers of former patients	9 senior researchers, postdocs, doctoral students
2–3 meetings yearly, total of 10 meetings	Median number PRPs at each meeting: 7	Median number researchers at each meeting^b: 5
	Each PRP attended a median of 5 meetings	Each researcher attended a median of 7,5 meetings

Patient involvement meetings

PRPs

Researchers^a

Half-day meetings on Saturdays, including lunch

10 former patients

2 mothers of former patients

9 senior researchers, postdocs, doctoral students

2–3 meetings yearly, total of 10 meetings

Median number PRPs at each meeting: 7

Median number researchers at each meeting^b: 5

Each PRP attended a median of 5 meetings

Each researcher attended a median of 7,5 meetings

PRPs: Patient research partners

^a The composition and number of research group members varied over the collaboration period

^b including two senior researchers (project leaders) who both attended all but one meeting