Table 1.
Comparison of Clinic Structure Between DCH and SLCH
| OHSU DCH | WUSM SLCH | |
|---|---|---|
| Referral system | Patients identified and referrals placed by PICU staff | |
| Qualifying diagnoses | Traumatic brain injury (TBI), spinal cord injury, stroke, neuro-infectious and inflammatory diseases (e.g., meningitis, encephalitis, Guillain-Barré), hypoxic-ischemic injury after cardiac arrest, and status epilepticus. Other cases have been referred on a case-by-case basis, including patients with sepsis, prolonged mechanical ventilation, hemolytic uremic syndrome, cardiothoracic surgery, and patients on ECMO | |
| Time to initial follow-up visit | 4–6 weeks follow-up Initial follow-up clinic | |
| Clinic frequency | Clinic functions ½ day per week, 4 days per month (4 patients/day) | Clinic functions ½ day per week, 2 days per months (8 patients/day) |
| Clinic staff | Neurology | |
| PICU physician | ||
| Neuropsychology | ||
| Screening measures | Primary care PTSD screening tool for the DSM-5 (PC-PTSD-5)18 Pediatric Quality of Life Inventory (PedsQL)19 Brief Infant Sleep Questionnaire (BISQ)20 (less than 3 years of age)Sleep Disturbances Scale for Children (SDSC)21 (3 years and older)PROMIS22 | |
| - Parent proxy numeric rating scale v.1.0—pain intensity | ||
| - Parent proxy pain behavior—short form | ||
| - Parent proxy anxiety | ||
| - Parent proxy depressive symptoms | ||
| - Parent proxy fatigue | ||
| Neurology | 30 min appointment | |
| Interdisciplinary care | Briefing between neurology and neuropsychology | |
| Neuropsychology | 30 min appointment | 90 min appointment |
| Provides consultation to all patients at initial follow-up appointment | 30-min neurocognitive screen 15 min scoring 45 min interview and feedback |
|
| Comprehensive neuropsychological testing evaluation 4–6 months post PICU discharge as indicated | Referral and follow-up for comprehensive neuropsychological testing evaluation 3–6 months after the initial appointment as indicated | |
| Parent satisfaction | N/A | Parent Experience of Assessment Scale (PEAS) |
Abbreviations:
DCH = Doernbecher Children’s Hospital
OHSU = Oregon Health & Science University
PICU = Pediatric Intensive Care Unit
SLCH = St. Louis Children’s Hospital
WUSM = Washington University School of Medicine.