Table 1.
Demographic characteristics
| Child characteristics | n = 32 |
|---|---|
| Age, M (SD) | 13.96 (2.19) |
| Male n (%) | 17 (53) |
| SCD type | |
| Hemoglobin SS n (%) | 26 (81) |
| Hemoglobin SC n (%) | 5 (16) |
| Hemoglobin SB+ thalassemia n (%) | 1 (3) |
| Hydroxyurea n (%) | 17 (53) |
| Pain frequency (past 3 months) n (%) | |
| None | 7 (21.88) |
| ~1× per week | 7 (21.88) |
| 2–3× per week | 10 (31.25) |
| 3–6× per week | 3 (9.38) |
| Daily | 5 (15.63) |
| Number of pain locations, (0–7), M (SD) | 1.64 (1.65) |
| Opioid use, no. of diary days, (0–14), M (SD) | 1.32 (2.18) |
| Caregiver characteristics | n = 28 |
| Relation to child, n (%) | |
| Mother | 23 (82) |
| Father | 3 (11) |
| Grandparent | 2 (7) |
| Relationship status, n (%) | |
| Single | 14 (50) |
| Married or partnered | 10 (36) |
| Separated, divorced, or widowed | 3 (11) |
| Annual income, n (%) | |
| < $10 000 | 9 (32) |
| $10 000–$19 000 | 3 (11) |
| $20 000–$29 000 | 4 (14) |
| $30 000–$39 000 | 4 (14) |
| $40 000–$49 000 | 5 (18) |
| >$50 000 | 2 (7) |
M mean; SCD sickle cell disease; SD standard deviation.