Table 1.

Study characteristics and quality of the nine eligible publications

Ref	Study	Sponsor type	Patient involvement in publication (background)		Patient involvement in lay summaries of clinical trial results		Grading score (Newcastle-Ottawa Scale)	Therapeutic area	Country	Publisher
			Author	Contributor	Author	Contributor
[19]	Absolom K, et al. Qual Life Res. 2015.	NIHR	Y (PPI group member)	Y (PPI group member)	N	N	Poor/fair quality	Oncology	UK	Springer Nature
[20]	Pollard K, et al. Int J Health Care Qual Assur. 2015.	Higher Education Innovation Fund, West of England University	N	Y (service user research partners)	N	N	Poor/fair quality	General	UK	Emerald
[21]	Hyde C, et al. Health Expect. 2017.	NIHR	N	Y (patient research user group members)	N	N	Good quality	Pain	UK	Wiley
[22]	Mann C, et al. Res Involv Engagem. 2018.	NIHR Health Services and Delivery Research Programme	Y (Patient Involvement in Primary Care Research group)	Y (Patient Involvement in Primary Care Research group)	N	N	Good quality	Chronic multiple morbidities	UK	BMC Springer Nature
[23]	Pérez Jolles MP, et al. Health Expect. 2017.	PCORI	Y (mentor parent group members)	Y (mentor parent group members)	N	N	Good quality	Mental health	US	Wiley
[24]	Howe A, et al. Res Involv Engagem. 2017.	NIHR Health Services and Delivery Research Programme	Y (PPI representatives)	Y (PPI representatives)	N	N	Good quality	General	UK	BMC Springer Nature
[25]	Forsythe L, et al. Qual Life Res. 2018.	PCORI	Y (patient advisor)	Y (patients, caregivers, advocacy groups)	N	N	Good quality	General	US	Springer Nature
[26]	Blackburn S, et al. Res Involv Engagem. 2018.	NIHR School for Primary Care Research	Y (PPI contributors)	Y (PPI contributors)	N	N	Good quality	General Primary care	UK	BMC Springer Nature
[27]	Barnfield S, et al. Res Involv Engagem. 2017.	Medical Research Council, UK	N	N	N	N	Fair quality	Stroke	UK	BMC Springer Nature

NIHR National Institute for Health Research, PCORI Patient-Centered Outcomes Research Institute, PPI patient and public involvement