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. 2020 Jan 27;5(2):184–192. doi: 10.1177/2396987319897466

Table 3.

Resource use data collection guidance.

Variables Data collection guidance
Additional costs of treatment This should be the costs of delivering the new treatment that are above and beyond a comparator treatment or usual care
Data collection to be considered for studies using a health care sector perspective a
 Transport Transport between hospital (e.g. transfer to a centre providing reperfusion) or from home, type of vehicle
 Rehabilitation Inpatient or outpatient rehabilitation, number of sessions, length of stay, specific services and procedures provided while in rehabilitation (e.g. assessment of impairment)
 Hospital presentations Number of presentations, type of presentation (e.g. emergency department or admission), dates or length of stay, specific services and procedures provided while in hospital (e.g. reperfusion)
 Respite care Number of times used, length of stay
 Medications Type of medications (e.g. antihypertensive medications), number of medications, dose, time on medication
 Change in residence and living arrangements Information to capture changes in residence as this is an indicator of independence that affects costs (e.g. costs of moving to an aged care facility may be applied)
 Home modifications Type of home modifications and out-of-pocket costs (e.g. for the installation of ramp to home)
 Aids and equipment Type of aids and equipment and out-of-pocket costs (e.g. for a walking frame)
 Community services Type of service, number of times provided and out-of-pocket costs
 Family physician contacts Number of contacts, other associated services (e.g. practice nurse) and out-of-pocket costs
 Specialist contacts Type of specialist, number of contacts and out-of-pocket costs
 Private therapy Type of therapy, number of contacts and out-of-pocket costs
 Diagnostic tests Type of tests, number of tests and out-of-pocket costs
Data collection to be considered for studies using a societal perspective
 Employment/volunteer work Type of work and hours, income and change since stroke
 Carer employment/volunteer work Type of work and hours, income and change since stroke
 Household productivity Type of activity and hours and change since stroke (e.g. cleaning, cooking, gardening, caring for family members)
 Leisure time Type of activity and hours and change since stroke
Additional items to consider
 Clinical assessments at baseline These should be clinical assessments that can be used to estimate costs (e.g. modified Rankin Scale)
 Clinical outcomes after treatment These should be clinical assessments that can be used to estimate costs (e.g. modified Rankin Scale)

aCollecting data on the utilisation of health services can be labour intensive. Limiting data collection to certain categories of resource use and types of resources should be justified.