Table 3.
WERF survey statistics for participants’ medical history (N = 533).
| WERF survey statistics for participants’ medical history | |
|---|---|
| WERF Survey question | N (%) |
| Menstrual and endometriosis history | |
| Age at menarchy: Mean (s.d.) | 12.13 (1.6) |
| Were your periods in the last 3 months hormone-induced? | 165 (31.0%) |
| Were your periods in the the last 3 months regular? | 239 (44.8%) |
| How many days of bleeding did you usually have for each period in the last 3 months (Not counting discharge/spotting for which you needed a panty liner only)? Mean (s.d.) | 6.24 (3.6) |
| At what age did you start having pain with your period? Mean (s.d.) | 14.63 (4.7) |
| How old were you when you first had symptoms? Mean (s.d.) | 17.79 (6.9) |
| How many doctors did you see before receiving a diagnosis of endometriosis? Mean (s.d.) | 5.03 (4.6) |
| How many surgical procedures have you had for endometriosis or pelvic pain? Mean (s.d.) | 1.70 (1.6) |
| Have you ever had surgery to look for endometriosis and none was found? | 45 (8.6%) |
| Family history of endometriosis | 202 (37.9%) |
| Mother | 92 (17.3%) |
| Daughter | 1 (0.2%) |
| Sister | 32 (6.0%) |
| Maternal Grandmother, aunt, and/or cousin | 86 (16.1%) |
| Paternal Grandmother, aunt, and/or cousin | 63 (11.8%) |
| Family history of chronic pelvic pain | 240 (45.0%) |
| Mother | 136 (25.5%) |
| Daughter | 4 (0.8%) |
| Sister | 61 (11.4%) |
| Maternal Grandmother, aunt, and/or cousin | 107 (20.1%) |
| Paternal Grandmother, aunt, and/or cousin | 73 (13.7%) |
| Surgical history | |
| Appendectomy | 89 (16.7%) |
| Hysterectomy | 22 (4.1%) |
| Oophorectomy | 22 (4.1%) |
| Cervical surgery (LEEP or conization) | 21 (3.9%) |
| Hysteroscopy | 71 (13.3%) |
| Gallbladder surgery | 35 (6.6%) |
| Hernia operation | 21 (3.9%) |
| Sigmoidoscopy/colonoscopy | 118 (22.1%) |
| Laparoscopy count | 1.41 (1.3) |
| Some abdominal surgery | 417 (78.2%) |
Note that not all Phendo participants completed the WERF survey.