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. Author manuscript; available in PMC: 2020 Jun 25.
Published in final edited form as: J Health Commun. 2016 Nov 2;21(11):1187–1197. doi: 10.1080/10810730.2016.1237592

Table 1.

Participant Eligibility Criteria by Group

Groups Population Eligibility Criteria
All All Participants Aged 18 or older
English speaking
Visit at least one active online health community focused on an illness or medical condition1
Not employed in healthcare or pharmaceutical industries
Community participation is not part of job
1-3 General Users Visit community at least once per month
4-5 Active / Heavy Users More likely to post information on site than read it
Visit community at least once per week
6-7 Passive / Light Users More likely to read information on site than post it
Visit community at least once per month but less than once per week
8 Recent Diagnosis (Fibromyalgia) Diagnosed with fibromyalgia within last 12 months (or family member diagnosed in last 12 months)
Visit a community focused on fibromyalgia at least once per month
9 Recent Treatment Decision (Depression) Diagnosed with clinical depression (or family member diagnosed)
Made a major treatment decision related to depression within last 12 months
Visit a community focused on depression at least once per month
10 Single Community (Multiple Sclerosis) Diagnosed with multiple sclerosis (or family member diagnosed)
Visit the PatientsLikeMe MS community at least once per week
1

We verified that OHCs were active and eligible by visiting OHC URLs provided by potential participants. We confirmed that site content was mostly or exclusively member-generated, posted within the last week, and focused on a specific medical condition.