Table 3.
Experience and interest in research
| n | % | |
|---|---|---|
| Previous experience with research (n = 34) | ||
| Previous research experience (self or child) | 22 | 65 |
| No previous research experience (self or child) | 12 | 35 |
| Number of prior research studies (Self) | ||
| 1 | 7 | 21 |
| 2 | 1 | 3 |
| 3+ | 3 | 9 |
| No response | 23 | 68 |
| Role in prior research studies (Self) (n = 11) | ||
| Participant | 10 | 91 |
| Study coordination | 0 | 0 |
| Other | 1 | 9 |
| Number of prior research studies (Child) | ||
| 1 | 3 | 9 |
| 2 | 2 | 6 |
| 3+ | 2 | 6 |
| No response | 27 | 79 |
| Role in prior research studies (Child) (n = 7) | ||
| Participant | 7 | 100 |
| Other | 0 | 0 |
| Interest in being a retinoblastoma advocate (n = 34) | ||
| 1—Not interested | 2 | 6 |
| 2—Somewhat not interested | 2 | 6 |
| 3—Neutral | 5 | 15 |
| 4—Interested | 9 | 26 |
| 5—Very interested | 15 | 44 |
| No response | 1 | 3 |
| Opportunities to participate in retinoblastoma research (n = 34) | ||
| Usually unaware of any opportunities | 12 | 35 |
| Too few opportunities | 11 | 32 |
| Just enough opportunities | 9 | 26 |
| Too many opportunities | 0 | 0 |
| No response | 2 | 6 |