Table 2.
Recruitment and characteristics of the participants in the four focus groups
| Total | FG1 | FG2 | FG3 | FG4 | |
|---|---|---|---|---|---|
| Agreed date of participation, n | 37a | 8 | 10 | 8 | 12 |
| Notified cancellationb | 10 | 1 | 1 | 3 | 5 |
| Did not show up on the dayc | 3 | 1 | 0 | 1 | 1 |
| Participants’, n | 25 | 6 | 9 | 4 | 6 |
| Diagnosis, n: | |||||
| RA (positive/negative) | 21 (11/9) | 4 (0/4) | 8 (3/4) | 3 (3/0) | 6 (5/1) |
| PsA | 3 | 2 | 0 | 1 | 0 |
| axSpA | 1 | 0 | 1 | 0 | 0 |
| Sex | |||||
| Female, n (%) | 20 (80) | 6 (100) | 4 (44) | 4 (100) | 6 (100) |
| Age, years (mean [range]) | 61.8 [28–79] | 58.8 [47–62] | 60.0 [28–76] | 64.3 [51–74] | 66.0 [51–79] |
| ≥ 63 (67d) year , n | 14 (10) | 1 (1) | 6 (4) | 3 (2) | 4 (3) |
| Years since diagnosis (mean [range]) | 14.3 [4–59] | 8.0 [4–16] | 17.9 [7–59] | 13.5 [9–22] | 15.8 [4–28] |
| Weekly work hours, n | |||||
| Retired or working ≤16 h/week | 17 | 5 | 5 | 2 | 5 |
| Working ≥37 h/week | 8 | 1 | 4 | 2 | 1 |
| Civil status, n | |||||
| Married/cohabitant | 18/2 | 4/0 | 6/1 | 4/0 | 4/1 |
| Living alone | 4 | 1 | 2 | 0 | 1 |
| Did not answer | 1 | 1 | 0 | 0 | 0 |
| Routine attendance in the nurse-led clinic | |||||
| Licenced medication handed out every 8 weeks | 13 | 6 | 6 | 1 | 0 |
| Receive infusion every 6–8 weeks | 6 | 0 | 3 | 3 | 0 |
| Annual nurse consultation only | 6 | 0 | 0 | 0 | 6 |
FG Focus Group, n/N number/Total, % percentage, RA rheumatoid arthritis, PsA psoriatic arthritis, axSpa axial spondyloarthritis
aOne participant accepted dates for both FG1 and FG2 as she forgot and did not show up for the first focus group
bReasons were Illness of own/kids/grandkids (n = 3/2/2), other priorities arose for the day (n = 2) and snow (n = 1)
cUnknown reason
dAverage retirement age in Denmark in 2004 (2018)