Table 1.

HDSA 1994/2003 protocol versus 2016 revised protocol

1994/2003 protocola	2016 revised protocol
Telephone screen	Telephone screen
Visit 1: In-person genetic counseling (with support person, strongly advised)	Visit 1: In-person (with support person, strongly advised) Genetic counseling Sign informed consent document Mental health assessment Neurological examination offered Draw blood
Visit 2: Psychiatric assessment	Visit 2: Disclosure of results in person Arrange postresult follow-up
Visit 3: Neurological evaluation offered Review of potential impact of the test Informed consent Blood draw	N/A
Visit 4: Disclosure of results in person (with support person strongly advised)	N/A
Telephone follow-up: Additional visits for supportive counseling as needed Neurological evaluation for those testing positive	Telephone follow-up: Additional visits for supportive counseling as needed Neurological evaluation for those testing positive

Data from Huntington's Disease Society of America 1994, 2016.

^aThe order of the genetic counseling, neurological evaluation, and psychological assessment may vary.