Table 1. Algorithm for deciding PD likelihood of participants, by available sources of PD information.
Likelihood score 1 | Likelihood score 2 | Likelihood score 3 |
---|---|---|
Tanner score 2–4 (A1)a | • 1 type of evidence from:Tanner score ≥ 5 (A2)a • Self-reported PD diagnosis (B)b • Self-reported PD medication (C)b |
• At least 2 types of evidence from: A2, B and C • At least: PD diagnosis death certificate (D)c • At least: PD diagnosis HDR (E)d • At least: PD diagnosis EMR (F)e |
a assessed in follow-up 3 questionnaire EPIC-NL, baseline and follow-up AMIGO
b assessed in follow up 1 + 2 questionnaires (open questions) and follow-up 3 questionnaires (PD specific) EPIC-NL, and baseline and follow-up AMIGO
c assessed from baseline to 31 December 2011 EPIC-NL, baseline to 31 August 2015 AMIGO
d assessed from baseline to 31 December 2010 EPIC-NL
e assessed from 2011 until 2013 in AMIGO, ATC and ICPC codes
PD, Parkinson’s Disease; EMR, electronic medical records; HDR, hospital discharge registry; ATC, Anatomical Therapeutic Chemical; ICPC, International Classification of Primary Care.