Table 2. Baseline characteristics and percentage of participants with a source of PD information according to cohort (AMIGO, EPIC-NL, Combined).
| AMIGO | EPIC-NL | Combined | |
|---|---|---|---|
| Total N | 14829 | 40011 | 54825 |
| Age (median, IQR) | 51.0 (43.0–59.0) | 51.4 (41.9–57.6) | 51.4 (42.3–58.0) |
| Female (%) | 8268 (55.8%) | 29751 (74.4%) | 38007 (69.3%) |
| Past smoker (%) | 5744 (38.8%) | 12440 (31.2%) | 18179 (33.3%) |
| Current smoker (%) | 2322 (15.7%) | 12164 (30.5%) | 14484 (26.5%) |
| Questionnaire data: | |||
| Self-reported PD medication use (%) | 32 (0.2%) | 87 (0.2%) | 119 (0.2%) |
| Self-reported PD doctor diagnosis (%) | 26 (0.2%) | 112 (0.3%) | 138 (0.3%) |
| Tanner score 2–4 (%) | 1874 (12.6%) | 3068 (7.7%) | 4939 (9.0%) |
| Tanner score ≥ 5 (%) | 242 (1.6%) | 547 (1.4%) | 789 (1.4%) |
| Tanner score 2011 (mean, sd) | 0.60 (1.12) | 1.03 (1.48) | 0.81(1.33) |
| Tanner score 2015 (mean, sd) | 0.54 (1.05) | - | 0.54 (1.05) |
| Registry data: | |||
| HDR PD diagnosis (%) | - | 94 (0.2%) | 94 (0.2%) |
| EMR PD (%) | 133 (0.9%) | - | 133 (0.2%) |
| EMR PD ICPC diagnosis (%) | 21 (0.1%) | - | 21 (0.1%) |
| EMR PD ATC medication (%) | 130 (0.9%) | - | 130 (0.2%) |
| PD on death certificate (%) | 1 (0.0%) | 37 (0.1%) | 38 (0.1%) |
Participants may have multiple sources of PD information.
Age, Age at study entry; PD, Parkinson’s Disease; EMR, electronic medical records; HDR, hospital discharge registry; SD, standard deviation; IQR, Interquartile range; N, sample size; ATC, Anatomical Therapeutic Chemical; ICPC, International Classification of Primary Care.