Table 5. Verification of different sources of PD information by information retrieved from the General Practitioners for AMIGO, EPIC-NL and Combined cohort.

Information source PD	N evidence available	N positive evidence	%	95%CI	Confirmed PD status at GP
					PD	%	95%CI
AMIGO	226				18
PD diagnosis (SR)	226	21	9.3	5.8–13.9	15	71.4	47.8–88.7
PD medication(SR)	226	26	11.5	7.7–16.4	15	57.7	36.9–76.6
Tanner score 2011 ≥ 2	226	162	71.7	65.3–77.5	15	9.3	5.3–14.8
Tanner score 2011 ≥ 5	226	108	47.8	41.1–54.5	10	9.3	4.5–16.4
PD EMR	226	114	50.4	43.7–57.1	16	14.0	8.2–21.8
PD EMR ICPC diagnosis	226	17	7.5	4.4–11.8	14	82.4	56.6–96.2
PD EMR ATC medication	226	111	49.1	42.4–55.8	14	12.6	7.1–20.3
PD on death certificate	226	1	0.4	0.0–2.4	1	100	2.5–100
EPIC-NL	275				67
PD diagnosis (SR)	275	72	26.2	21.1–31.8	43	59.7	47.5–71.1
PD medication(SR)	275	47	17.1	12.8–22.1	35	74.5	59.7–86.1
Tanner score 2011 ≥ 2	233	211	90.6	86.1–94.0	36	17.1	12.2–22.8
Tanner score 2011 ≥ 5	233	116	49.8	43.2–56.4	31	26.7	18.9–35.7
PD HDR	275	42	15.3	11.2–20.1	23	54.8	38.7–70.2
PD on death certificate	275	10	3.6	1.8–6.6	9	90.0	55.5–99.7
COMBINED	501				85
PD diagnosis (SR)	501	93	18.6	15.3–22.2	58	62.4	51.7–72.2
PD medication(SR)	501	73	14.6	11.6–18.0	50	68.5	56.6–78.9
Tanner score 2011 ≥ 2	459	373	81.3	77.4–84.7	52	13.9	10.6–17.9
Tanner score 2011 ≥ 5	459	224	48.8	44.1–53.5	41	18.3	13.5–24.0
PD on death certificate	501	11	2.2	1.1–3.9	10	90.9	58.7–99.8

SR, self-reported; PD, Parkinson’s Disease; EMR, electronic medical records; HDR, hospital discharge registry; GP, general practitioner; ATC, Anatomical Therapeutic Chemical; ICPC, International Classification of Primary Care.