Distress (6 items) |
Feeling upset about my risk information |
Feeling sad about my risk information |
Feeling anxious or nervous about my risk information |
Feeling guilty about my risk information |
Feeling a loss of control |
Having problems enjoying life because of my risk information |
Uncertainty (9 items) |
Worrying about my risk of getting cancer (or getting cancer again if you have already been diagnosed with cancer) |
Being uncertain about what my risk information means about my cancer risk |
Being uncertain about what my risk information means for my child(ren) and/or family’s cancer risk |
Having difficulty making decisions about cancer screening or prevention (e.g. having preventive surgery or getting medical tests done) |
Feeling frustrated that there are no definite cancer prevention guidelines for me |
Thinking about my risk information has affected my work or family life |
Feeling concerned about how my risk information will affect my insurance status |
Having difficulty talking about my risk information with family members |
Worrying that the genetic counselling and testing process has brought about conflict within my family |
Positive experiences (4 items – reverse scaled) |
Feeling relieved about my risk information |
Feeling happy about my risk information |
Feeling that my family has been supportive during the genetic counselling and testing process |
Feeling satisfied with family communication about my genetic risk information |