Table 1.
Characteristics of the participants (N=67)
| Characteristics | n (%) |
|---|---|
| Role | |
| Patient | 54 (81) |
| Caregiver | 13 (19) |
| Sex | |
| Male | 24 (36) |
| Female | 43 (64) |
| Country | |
| United States (3 groups) | 21 (31) |
| Australia (4 groups) | 28 (42) |
| United Kingdom (3 groups) | 18 (27) |
| Ethnicitya | |
| White | 42 (63) |
| Black (American) | 11 (16) |
| Black (British) | 4 (6) |
| Asian | 4 (6) |
| Othera | 6 (9) |
| Age, yr | |
| 18–30 | 4 (6) |
| 31–50 | 20 (30) |
| 51–70 | 38 (57) |
| >70 | 5 (7) |
| Marital status | |
| Single | 16 (24) |
| Married/partnered | 39 (58) |
| Divorced/separated | 10 (15) |
| Widowed | 2 (3) |
| Number of children | |
| 0 | 18 (27) |
| 1–2 | 32 (48) |
| ≥3 | 17 (25) |
| Employment | |
| Full time | 24 (36) |
| Part time/casual | 11 (16) |
| Student | 3 (4) |
| Not employed/disabled | 13 (19) |
| Retired | 16 (24) |
| Education | |
| Before 10th grade (before age 16 yr) | 4 (6) |
| Completed 10th grade (age 16 yr) | 5 (7) |
| Completed 12th grade (ages 17–18 yr) | 7 (10) |
| Professional certificate | 11 (16) |
| Undergraduate degree | 22 (33) |
| Postgraduate degree | 18 (27) |
| Age at time of diagnosisb | |
| <18 | 5 (7) |
| 18–30 | 11 (16) |
| 31–50 | 23 (34) |
| 51–70 | 14 (21) |
| Cause of kidney diseaseb | |
| Diabetes | 9 (13) |
| Hypertension | 19 (28) |
| PKD | 7 (10) |
| GN | 19 (28) |
| Infection | 2 (3) |
| Immune/autoimmune | 7 (10) |
| Reflux nephropathy | 1 (1) |
| Unknown/do not know | 3 (4) |
| Other | 6 (9) |
| Type of KRT (current)b | |
| None | 16 (24) |
| Hemodialysis | 14 (21) |
| Peritoneal dialysis | 4 (6) |
| Kidney transplant | 20 (30) |
| Duration of KRT (current)b | |
| <6 mo | 1 (1) |
| 6–12 mo | 3 (4) |
| 1–3 yr | 13 (19) |
| 4–6 yr | 7 (10) |
| >6 yr | 15 (22) |
Numbers may not total 67 if not reported or participants could select multiple options. Approximately n=37 refused to participate or did not attend the focus groups because of other commitments, illness, or did not want to participate. PKD, polycystic kidney disease.
a
Included Hispanic Latino (n=1), Aboriginal Australian (n=1), Pakistani (n=2), Middle Eastern (n=1), and Indian (n=1).
b
Not applicable to caregivers.