Table 2.
Perceived importance of issues related to data-sharing, by research field (N = 229)
| Issues in data-sharing | Total (N = 229) | Clinical (N = 123) | Basic science (N = 62) | Social/behavioral (N = 15) | Public health/Policy (N = 29) | P-value | ||||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| Most important, n (%) | Important, n (%) | Less important, n (%) | Most important, n (%) | Important, n (%) | Less important, n (%) | Most important, n (%) | Important, n (% | Less important, n (%) | Most important, n (%) | Important, n (%) | Less important, n (%) | Most important, n (%) | Important, n (%) | Less important, n (%) | ||
| Ethical issues | 177 (77.3) | 48 (21.0) | 4 (1.7) | 91 (74.0) | 29 (23.6) | 3 (2.4) | 47 (75.8) | 14 (22.6) | 1 (1.6) | 13 (86.7) | 2 (13.3) | 0 (0.0) | 26 (89.7) | 3 (10.3) | 0 (0.0) | 0.61 |
| Acknowledgment | 170 (74.3) | 47 (20.5) | 12 (5.2) | 87 (70.7) | 31 (25.2) | 5 (4.1) | 45 (72.6) | 13 (21.0) | 4 (6.4) | 13 (86.6) | 1 (6.7) | 1 (6.7) | 25 (86.2) | 2 (6.9) | 2 (6.9) | 0.31 |
| Data documentation | 151 (65.9) | 71 (31.0) | 7 (3.1) | 83 (67.5) | 38 (30.9) | 1 (1.6) | 37 (59.7) | 22 (35.5) | 3 (4.8) | 11 (73.3) | 4 (26.7) | 0 (0.0) | 20 (69.0) | 7 (24.1) | 2 (6.9) | 0.57 |
| Restriction of use | 146 (63.8) | 76 (33.2) | 7 (3.0) | 77 (62.6) | 41 (33.3) | 5 (4.1) | 44 (71.0) | 18 (29.0) | 0 (0.0) | 10 (66.6) | 4 (26.7) | 1 (6.7) | 15 (51.7) | 13 (44.8) | 1 (3.5) | 0.44 |
| Data access conditions | 145 (63.3) | 73 (31.9) | 11 (4.8) | 76 (61.8) | 42 (34.1) | 5 (4.1) | 44 (71.0) | 16 (25.8) | 2 (3.2) | 9 (60.0) | 5 (33.3) | 1 (6.7) | 16 (55.2) | 10 (34.5) | 3 (10.3) | 0.63 |
| Data covered | 138 (60.2) | 73 (31.9) | 18 (7.9) | 68 (55.3) | 42 (34.1) | 13 (10.6) | 42 (67.7) | 19 (30.7) | 1 (1.6) | 11 (73.3) | 3 (20.0) | 1 (6.7) | 17 (58.6) | 9 (31.0) | 3 (10.3) | 0.33 |
| Data availability | 125 (54.6) | 87 (38.0) | 17 (7.4) | 61 (49.6) | 55 (44.7) | 7 (5.7) | 38 (61.3) | 22 (35.5) | 2 (3.2) | 8 (53.3) | 3 (20.0) | 4 (26.7) | 18 (62.1) | 7 (24.1) | 4 (13.8) | 0.01 |
| Broad consent for data-sharing | 116 (50.7) | 91 (39.7) | 22 (9.6) | 62 (50.4) | 48 (39.0) | 13 (10.6) | 32 (51.6) | 27 (43.6) | 3 (4.8) | 9 (60.0) | 4 (26.7) | 2 (13.3) | 13 (44.8) | 12 (41.4) | 4 (13.8) | 0.72 |
| Modes of data-sharing | 116 (50.7) | 101 (44.1) | 12 (5.2) | 57 (46.3) | 59 (48.0) | 7 (5.7) | 38 (61.3) | 22 (35.5) | 2 (3.2) | 9 (60.0) | 5 (33.3) | 1 (6.7) | 12 (41.4) | 15 (51.7) | 2 (6.9) | 0.47 |
| Data discoverability | 102 (44.5) | 93 (40.6) | 34 (14.9) | 51 (41.5) | 56 (45.5) | 16 (13.0) | 28 (45.2) | 25 (40.3) | 9 (14.5) | 7 (46.7) | 3 (20.0) | 5 (33.3) | 16 (55.2) | 9 (31.0) | 4 (13.8) | 0.26 |
| Timeliness of data-sharing | 93 (40.6) | 109 (47.6) | 27 (11.8) | 48 (39.0) | 56 (45.5) | 19 (15.5) | 25 (40.3) | 33 (53.2) | 4 (6.5) | 6 (40.0) | 9 (60.0) | 0 (0.0) | 14 (40.3) | 11 (37.9) | 4 (13.8) | 0.34 |
| Cost | 66 (28.8) | 106 (46.3) | 57 (24.9) | 31 (25.2) | 56 (45.5) | 36 (29.3) | 19 (30.6) | 30 (48.4) | 13 (21.0) | 7 (46.7) | 6 (40.0) | 2 (13.3) | 9 (31.0) | 14 (48.3) | 6 (20.7) | 0.56 |