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. 2020 May 11;103(1):528–536. doi: 10.4269/ajtmh.19-0651

Table 3.

Major concerns about sharing research data (N = 229)

Major concerns in data-sharing Total (N = 229) Clinical (N = 123) Basic science (N = 62) Social/behavioral (N = 15) Public health/policy (N = 29) P-value
Most important, n (%) Important, n (%) Less important, n (%) Most important, n (%) Important, n (%) Less important, n (%) Most important, n (%) Important, n (%) Less important, n (%) Most important, n (%) Important, n (%) Less important, n (%) Most important, n (%) Important, n (%) Less important, n (%)
Issues related to ethical and legal compliance in sharing individual data 106 (46.3) 76 (33.2) 47 (20.5) 57 (46.3) 42 (34.2) 24 (19.5) 30 (48.4) 18 (29.0) 14 (22.6) 7 (46.7) 6 (40.0) 2 (13.3) 12 (41.4) 10 (34.5) 7 (24.1) 0.96
Control of the use of “sensitive” or “restricted” data by other researchers 102 (44.5) 86 (37.6) 41 (17.9) 52 (42.3) 48 (39.0) 23 (18.7) 30 (48.4) 24 (38.7) 8 (12.9) 8 (53.3) 3 (20.0) 4 (26.7) 12 (41.4) 11 (37.9) 6 (20.7) 0.72
Issues related to proprietary data 97 (42.3) 89 (38.9) 43 (18.8) 53 (43.1) 49 (39.8) 21 (17.1) 26 (42.0) 25 (40.3) 11 (17.7) 6 (40.0) 6 (40.0) 3 (20.0) 12 (41.4) 9 (31.0) 8 (27.6) 0.92
Organization/institution policy for data-sharing 70 (30.6) 99 (39.3) 69 (30.1) 39 (31.7) 52 (42.3) 32 (26.0) 20 (32.3) 22 (35.4) 20 (32.3) 5 (33.3) 6 (40.0) 4 (26.7) 6 (20.7) 10 (34.5) 13 (44.8) 0.59
Quality and integrity of sharable data (e.g., complete and homogeneous) 70 (30.6) 82 (35.8) 77 (33.6) 38 (30.9) 48 (39.0) 37 (30.1) 20 (32.3) 22 (35.4) 20 (32.3) 3 (20.0) 4 (26.7) 8 (53.3) 9 (31.0) 8 (27.6) 12 (41.4) 0.59
Organization/institution services or support in performing data-sharing 63 (27.5) 87 (38.0) 79 (34.5) 35 (28.5) 49 (39.8) 39 (31.7) 16 (25.8) 23 (37.1) 23 (37.1) 4 (26.7) 7 (46.6) 4 (26.7) 8 (27.6) 8 (27.6) 13 (44.8) 0.82
Citation of the dataset/original work and acknowledgment of the data repository 59 (25.8) 69 (30.1) 101 (44.1) 34 (27.6) 42 (34.1) 47 (38.2) 13 (21.0) 17 (27.4) 32 (51.6) 4 (26.7) 3 (20.0) 8 (53.3) 8 (27.6) 7 (24.1) 14 (48.2) 0.6
Technical issues (data-sharing platforms, data management, and interoperable systems) 51 (22.3) 106 (46.3) 72 (31.4) 32 (26.0) 62 (50.4) 29 (23.6) 8 (12.9) 30 (48.4) 24 (38.7) 3 (20.0) 4 (26.7) 8 (53.3) 8 (27.6) 10 (34.5) 11 (37.9) 0.054
Necessary resources (time and money) 48 (21.0) 87 (38.0) 94 (41.0) 33 (26.8) 48 (39.0) 42 (34.2) 9 (14.5) 23 (37.1) 30 (48.4) 3 (20.0) 5 (33.3) 7 (46.7) 3 (10.3) 11 (38.0) 15 (51.7) 0.23