Table 3.
Major concerns about sharing research data (N = 229)
Major concerns in data-sharing | Total (N = 229) | Clinical (N = 123) | Basic science (N = 62) | Social/behavioral (N = 15) | Public health/policy (N = 29) | P-value | ||||||||||
---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
Most important, n (%) | Important, n (%) | Less important, n (%) | Most important, n (%) | Important, n (%) | Less important, n (%) | Most important, n (%) | Important, n (%) | Less important, n (%) | Most important, n (%) | Important, n (%) | Less important, n (%) | Most important, n (%) | Important, n (%) | Less important, n (%) | ||
Issues related to ethical and legal compliance in sharing individual data | 106 (46.3) | 76 (33.2) | 47 (20.5) | 57 (46.3) | 42 (34.2) | 24 (19.5) | 30 (48.4) | 18 (29.0) | 14 (22.6) | 7 (46.7) | 6 (40.0) | 2 (13.3) | 12 (41.4) | 10 (34.5) | 7 (24.1) | 0.96 |
Control of the use of “sensitive” or “restricted” data by other researchers | 102 (44.5) | 86 (37.6) | 41 (17.9) | 52 (42.3) | 48 (39.0) | 23 (18.7) | 30 (48.4) | 24 (38.7) | 8 (12.9) | 8 (53.3) | 3 (20.0) | 4 (26.7) | 12 (41.4) | 11 (37.9) | 6 (20.7) | 0.72 |
Issues related to proprietary data | 97 (42.3) | 89 (38.9) | 43 (18.8) | 53 (43.1) | 49 (39.8) | 21 (17.1) | 26 (42.0) | 25 (40.3) | 11 (17.7) | 6 (40.0) | 6 (40.0) | 3 (20.0) | 12 (41.4) | 9 (31.0) | 8 (27.6) | 0.92 |
Organization/institution policy for data-sharing | 70 (30.6) | 99 (39.3) | 69 (30.1) | 39 (31.7) | 52 (42.3) | 32 (26.0) | 20 (32.3) | 22 (35.4) | 20 (32.3) | 5 (33.3) | 6 (40.0) | 4 (26.7) | 6 (20.7) | 10 (34.5) | 13 (44.8) | 0.59 |
Quality and integrity of sharable data (e.g., complete and homogeneous) | 70 (30.6) | 82 (35.8) | 77 (33.6) | 38 (30.9) | 48 (39.0) | 37 (30.1) | 20 (32.3) | 22 (35.4) | 20 (32.3) | 3 (20.0) | 4 (26.7) | 8 (53.3) | 9 (31.0) | 8 (27.6) | 12 (41.4) | 0.59 |
Organization/institution services or support in performing data-sharing | 63 (27.5) | 87 (38.0) | 79 (34.5) | 35 (28.5) | 49 (39.8) | 39 (31.7) | 16 (25.8) | 23 (37.1) | 23 (37.1) | 4 (26.7) | 7 (46.6) | 4 (26.7) | 8 (27.6) | 8 (27.6) | 13 (44.8) | 0.82 |
Citation of the dataset/original work and acknowledgment of the data repository | 59 (25.8) | 69 (30.1) | 101 (44.1) | 34 (27.6) | 42 (34.1) | 47 (38.2) | 13 (21.0) | 17 (27.4) | 32 (51.6) | 4 (26.7) | 3 (20.0) | 8 (53.3) | 8 (27.6) | 7 (24.1) | 14 (48.2) | 0.6 |
Technical issues (data-sharing platforms, data management, and interoperable systems) | 51 (22.3) | 106 (46.3) | 72 (31.4) | 32 (26.0) | 62 (50.4) | 29 (23.6) | 8 (12.9) | 30 (48.4) | 24 (38.7) | 3 (20.0) | 4 (26.7) | 8 (53.3) | 8 (27.6) | 10 (34.5) | 11 (37.9) | 0.054 |
Necessary resources (time and money) | 48 (21.0) | 87 (38.0) | 94 (41.0) | 33 (26.8) | 48 (39.0) | 42 (34.2) | 9 (14.5) | 23 (37.1) | 30 (48.4) | 3 (20.0) | 5 (33.3) | 7 (46.7) | 3 (10.3) | 11 (38.0) | 15 (51.7) | 0.23 |