Table 4. Voting responses from speaker-posed questions.

Explanations of technical terms were given with the question, or in the accompanying presentation. The most common answer in each category is highlighted in bold.

Presentation topic	Question	Responses (frequencies)
Theirworld Edinburgh Birth Cohort	At what age do you think the issue of the child consenting to continued participation in a birth cohort study should be raised?	10 years – 12% 12 years – 25% 14 years – 29% 16 years – 29% Not sure – 3% I’d rather not say <1% (1 person) [201 respondents]
	Do you think that all pregnant women and their babies who receive care in the NHS should be offered an opportunity to contribute to knowledge and evidence by participating in approved research studies?	Definitely yes – 61% On balance, yes – 36% Not sure – 2% On balance, no – 1% Definitely no – no votes I’d rather not say – no votes [215 respondents]
	Do you think that approved researchers should be allowed access to these blood spots?	Definitely yes – 79% On balance, yes – 18% Not sure – 2% On balance, no – no votes Definitely no <1% (1 person) I’d rather not say – no votes [216 respondents]
Paediatric cohort	Would you be willing for researchers to use information from your health record in research?	Yes, without reservation – 76% On balance, yes – 19% Not sure – 3% On balance - 1% Without reservation <1% (1 person) I’d rather not say – no votes [214 respondents]
Family cohort	On a scale of 1 (not very) to 5 (totally) how much do you trust University Health Researchers with your data?	5, totally – 53% 4, - 34% 3 – 9% 2 – 2% 1 – 1% I’d rather not say – 1% (2 people) [220 respondents]
	On a scale of 1 (not very) to 5 (totally) how much do you trust your GP or hospital doctor with your data?	5, totally – 50% 4, - 31% 3 – 10% 2 – 4% 1 – 4% I’d rather not say – 2% (4 people) [220 respondents]
	On a scale of 1 (not very) to 5 (totally) how much do you trust companies developing new tests or drugs with your data?	5, totally – 10% 4, - 25% 3, - 35% 2, - 11% 1, not very – 17% I’d rather not say – 2% [4 people] [213 respondents]
Paediatric Cohort & Combining Scottish and English cohorts	We would like to collect information about how much and where you exercise using something like a watch or ‘Fit Bit’. Would you be willing?	Yes, without reservation – 68% On balance, yes – 20% Not sure – 7% On balance, no – 2% Without reservation, no – 2% I’d rather not say – no votes [213 respondents]
	Would you be willing to change an aspect of your lifestyle (e.g. attend a social club, changing your diet) as part of an intervention study?	Definitely yes – 38% On balance, yes – 35% Not sure - 16% On balance, no - 6% Definitely no - 4% I’d rather not say <1% (1 perso [188 respondents]
	Would you be willing to take a new drug as part of an intervention study?	Definitely yes – 19% On balance, yes – 26% On balance, no – 12% Definitely no – 7% Not sure – 35% [186 respondents]
Youth Mental Health	Would you be prepared to have a brain scan to help predict later mental illnesses, like schizophrenia or depression for research?	Definitely yes – 50% On balance, yes – 28% Not sure – 14% On balance, no – 4% Definitely no – 2% I’d rather not say <1% (1 person) [202 respondents]
	Would you want to have access to a brain scan test of future mental illness, if it were safe and accurate?	Definitely yes – 47% On balance, yes – 26% Not sure – 16% On balance, no – 7% Definitely no – 3% I’d rather not say <1% (1 person) [205 respondents]
Older Age Cohort	If someone has said no, or not given a reply [to post- mortem brain collection], should researchers approach them again to see if they have changed their mind/would like to donate now?	Definitely yes – 45% Possibly yes – 18% Yes, if they didn’t reply before - 25% Not sure – 7% Probably not – 2% Definitely not – 2% I’d rather not say – 1% (2 people) [189 respondents]
	If asked, would you encourage your children and grandchildren to take part in research cohorts?	Definitely yes – 88% On balance, yes – 10% Not sure - 1% (1 person) On balance, no – no votes Definitely no - 1% (1 person) I’d rather not say - 1% (1 person) [199 respondents]
Combining Scottish and English cohorts	Would you be willing to repeat the testing you have already done but on a more frequent basis? (i.e. every 2 years?)	Definitely yes – 61% On balance, yes – 26% Not sure – 7% On balance, no - 3% Definitely no – 1% (2 people) I’d rather not say – 2% (3 people) [176 respondents]