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. 2020 Aug 28;5:24. Originally published 2020 Feb 10. [Version 2] doi: 10.12688/wellcomeopenres.15651.2

Table 3. List of multiple choice questions and voting responses.

Each speaker asked 2 or 3 questions during or at the end of their talk. The questions are itemized in the order that they were asked and the potential multiple-choice answers for each question are listed. Explanations of technical terms were given with the question, or in the accompanying presentation.

Presentation Topic Question Response Options Frequencies
Introduction Which cohort do you belong
to?
1. Aberdeen Children of the 50s
and Gen Scotland
graphic file with name wellcomeopenres-5-17855-g0001.jpg
2. Generation Scotland only
3. Lothian Birth Cohort
4. Theirworld Edinburgh Birth
Cohort
5. I’m here as a guest/ I am not
a member of a cohort
6. I’d rather not say (1 person)
[211 respondents]
Theirworld Edinburgh
Birth
At what age do you think the
issue of the child consenting
to continued participation in
a birth cohort study should
be raised?
1. 10 years graphic file with name wellcomeopenres-5-17855-g0002.jpg
Cohort 2. 12 years
(Paediatric cohort) 3. 14 years
4. 16 years
5. Not sure
6. I’d rather not say (1 person)
[201 respondents]
Do you think that all
pregnant women and their
babies who receive care in
the NHS should be offered
an opportunity to contribute
to knowledge and evidence
by participating in approved
research studies?
1. Definitely yes graphic file with name wellcomeopenres-5-17855-g0003.jpg
2. On balance, yes
3. Not sure
4. On balance, no
5. Definitely no
6. I’d rather not say
[215 respondents]
Do you think that approved
researchers should be
allowed access to these
blood spots?
1. Definitely yes graphic file with name wellcomeopenres-5-17855-g0004.jpg
2. On balance, yes
3. Not sure
4. On balance, no
5. Definitely no (1 person)
6. I’d rather not say
[216 respondents]
Aberdeen children of
the 1950s
Would you be willing
for researchers to use
information from your health
record in research?
1. Yes, without reservation graphic file with name wellcomeopenres-5-17855-g0005.jpg
(Older age cohort) 2. On balance yes
3. Not sure
4. On balance, no
5. Without reservation no (1
person)
6. I’d rather not say – no votes
[214 respondents]
We would like to collect
information about how much
and where you exercise
using something like a watch
or ‘Fit Bit’. Would you be
willing?
1. Yes, without reservation graphic file with name wellcomeopenres-5-17855-g0006.jpg
2. On balance yes
3. Not sure
4. On balance, no
5. Without reservation no
6. I’d rather not say
[213 respondents]
Generation Scotland On a scale of 1 (not very)
to 5 (totally) how much do
you trust University Health
Researchers with your data?
1. (not very) graphic file with name wellcomeopenres-5-17855-g0007.jpg
(Family cohort) 2.
3.
4.
5. (totally)
6. I’d rather not say (2 people)
[220 respondents]
On a scale of 1 (not very) to
5 (totally) how much do you
trust your GP or hospital
doctor with your data?
1. (not very) graphic file with name wellcomeopenres-5-17855-g0008.jpg
2.
3.
4.
5. (totally)
6. I’d rather not say (4 people)
[220 respondents]
On a scale of 1 (not very) to
5 (totally) how much do you
trust companies developing
new tests or drugs with your
data?
1. (not very) graphic file with name wellcomeopenres-5-17855-g0009.jpg
2.
3.
4.
5. (totally)
6. I’d rather not say (4 people)
[213 respondents]
Youth Mental Health Would you be prepared to
have a brain scan to help
predict later mental illnesses,
like schizophrenia or
depression for research?
1. Definitely yes graphic file with name wellcomeopenres-5-17855-g0010.jpg
2. On balance, yes
3. Not sure
4. On balance, no
5. Definitely no
6. I’d rather not say (1 person)
[202 respondents]
Would you want to have
access to a brain scan test
of future mental illness, if it
were safe and accurate?
1. Definitely yes graphic file with name wellcomeopenres-5-17855-g0011.jpg
2. On balance, yes
3. Not sure
4. On balance, no
5. Definitely no
6. I’d rather not say (1 person)
[205 respondents]
Lothian Birth Cohort If asked, would you
encourage your children
and grandchildren to take part
in research cohorts?
1. Definitely yes graphic file with name wellcomeopenres-5-17855-g0012.jpg
(Older age cohort) 2. On balance, yes
3. Not sure – 1% (1 person)
4. On balance, no – no votes
5. Definitely no (1 person)
6. I’d rather not say (1 person)
[199 respondents]
If someone has said no, or
not given a reply, [to post-
mortem brain donation]
should researchers approach
them again to see if they
have changed their mind/
would like to donate now?
1. Definitely yes, ask them again graphic file with name wellcomeopenres-5-17855-g0013.jpg
2. Possibly yes
3. Yes, but only if they didn’t
reply previously
4. Not sure
5. Probably not
6. Definitely not
7. I’d rather not say (2 people)
[189 respondents]
Combining Scottish
and English cohort
data.
Would you be willing to
repeat the testing you have
already done but on a more
frequent basis? (i.e. every 2
years?)
1. Definitely yes graphic file with name wellcomeopenres-5-17855-g0014.jpg
2. On balance, yes
3. Not sure
4. On balance, no
5. Definitely no (2 people)
6. I’d rather not say (3 people)
[176 respondents]
Would you be willing to
change an aspect of your
lifestyle (e.g. attend a social
club, change your diet)
as part of an intervention
study?
1. Definitely yes graphic file with name wellcomeopenres-5-17855-g0015.jpg
2. On balance, yes
3. Not sure
4. On balance, no
5. Definitely no
6. I’d rather not say (1 person)
[188 respondents]
Would you be willing to take
a new drug as part of an
intervention study?
1. Definitely yes graphic file with name wellcomeopenres-5-17855-g0016.jpg
2. On balance, yes
3. Not sure
4. On balance, no
5. Definitely no
6. I’d rather not say (1 person)
[186 respondents]