Table 3. List of multiple choice questions and voting responses.
Presentation Topic | Question | Response Options | Frequencies |
---|---|---|---|
Introduction | Which cohort do you belong
to? |
1. Aberdeen Children of the 50s
and Gen Scotland |
|
2. Generation Scotland only | |||
3. Lothian Birth Cohort | |||
4. Theirworld Edinburgh Birth
Cohort |
|||
5. I’m here as a guest/ I am not
a member of a cohort |
|||
6. I’d rather not say (1 person) | |||
[211 respondents] | |||
Theirworld Edinburgh
Birth |
At what age do you think the
issue of the child consenting to continued participation in a birth cohort study should be raised? |
1. 10 years | |
Cohort | 2. 12 years | ||
(Paediatric cohort) | 3. 14 years | ||
4. 16 years | |||
5. Not sure | |||
6. I’d rather not say (1 person) | |||
[201 respondents] | |||
Do you think that all
pregnant women and their babies who receive care in the NHS should be offered an opportunity to contribute to knowledge and evidence by participating in approved research studies? |
1. Definitely yes | ||
2. On balance, yes | |||
3. Not sure | |||
4. On balance, no | |||
5. Definitely no | |||
6. I’d rather not say | |||
[215 respondents] | |||
Do you think that approved
researchers should be allowed access to these blood spots? |
1. Definitely yes | ||
2. On balance, yes | |||
3. Not sure | |||
4. On balance, no | |||
5. Definitely no (1 person) | |||
6. I’d rather not say | |||
[216 respondents] | |||
Aberdeen children of
the 1950s |
Would you be willing
for researchers to use information from your health record in research? |
1. Yes, without reservation | |
(Older age cohort) | 2. On balance yes | ||
3. Not sure | |||
4. On balance, no | |||
5. Without reservation no (1
person) |
|||
6. I’d rather not say – no votes | |||
[214 respondents] | |||
We would like to collect
information about how much and where you exercise using something like a watch or ‘Fit Bit’. Would you be willing? |
1. Yes, without reservation | ||
2. On balance yes | |||
3. Not sure | |||
4. On balance, no | |||
5. Without reservation no | |||
6. I’d rather not say | |||
[213 respondents] | |||
Generation Scotland | On a scale of 1 (not very)
to 5 (totally) how much do you trust University Health Researchers with your data? |
1. (not very) | |
(Family cohort) | 2. | ||
3. | |||
4. | |||
5. (totally) | |||
6. I’d rather not say (2 people) | |||
[220 respondents] | |||
On a scale of 1 (not very) to
5 (totally) how much do you trust your GP or hospital doctor with your data? |
1. (not very) | ||
2. | |||
3. | |||
4. | |||
5. (totally) | |||
6. I’d rather not say (4 people) | |||
[220 respondents] | |||
On a scale of 1 (not very) to
5 (totally) how much do you trust companies developing new tests or drugs with your data? |
1. (not very) | ||
2. | |||
3. | |||
4. | |||
5. (totally) | |||
6. I’d rather not say (4 people) | |||
[213 respondents] | |||
Youth Mental Health | Would you be prepared to
have a brain scan to help predict later mental illnesses, like schizophrenia or depression for research? |
1. Definitely yes | |
2. On balance, yes | |||
3. Not sure | |||
4. On balance, no | |||
5. Definitely no | |||
6. I’d rather not say (1 person) | |||
[202 respondents] | |||
Would you want to have
access to a brain scan test of future mental illness, if it were safe and accurate? |
1. Definitely yes | ||
2. On balance, yes | |||
3. Not sure | |||
4. On balance, no | |||
5. Definitely no | |||
6. I’d rather not say (1 person) | |||
[205 respondents] | |||
Lothian Birth Cohort | If asked, would you
encourage your children and grandchildren to take part in research cohorts? |
1. Definitely yes | |
(Older age cohort) | 2. On balance, yes | ||
3. Not sure – 1% (1 person) | |||
4. On balance, no – no votes | |||
5. Definitely no (1 person) | |||
6. I’d rather not say (1 person) | |||
[199 respondents] | |||
If someone has said no, or
not given a reply, [to post- mortem brain donation] should researchers approach them again to see if they have changed their mind/ would like to donate now? |
1. Definitely yes, ask them again | ||
2. Possibly yes | |||
3. Yes, but only if they didn’t
reply previously |
|||
4. Not sure | |||
5. Probably not | |||
6. Definitely not | |||
7. I’d rather not say (2 people) | |||
[189 respondents] | |||
Combining Scottish
and English cohort data. |
Would you be willing to
repeat the testing you have already done but on a more frequent basis? (i.e. every 2 years?) |
1. Definitely yes | |
2. On balance, yes | |||
3. Not sure | |||
4. On balance, no | |||
5. Definitely no (2 people) | |||
6. I’d rather not say (3 people) | |||
[176 respondents] | |||
Would you be willing to
change an aspect of your lifestyle (e.g. attend a social club, change your diet) as part of an intervention study? |
1. Definitely yes | ||
2. On balance, yes | |||
3. Not sure | |||
4. On balance, no | |||
5. Definitely no | |||
6. I’d rather not say (1 person) | |||
[188 respondents] | |||
Would you be willing to take
a new drug as part of an intervention study? |
1. Definitely yes | ||
2. On balance, yes | |||
3. Not sure | |||
4. On balance, no | |||
5. Definitely no | |||
6. I’d rather not say (1 person) | |||
[186 respondents] |