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. 2020 Jul 9;11:360. doi: 10.3389/fendo.2020.00360

Table 1.

PROs incorporated into the 4T program.

Topic Construct measured/relevant points
Youth and parent outcomes—diabetes distress
Diabetes distress
(Diabetes Distress Scale) Fisher et al. (37)
The DDS-2 (2 item youth survey) and DDS-P (20 item parent survey) are commonly used measures to understand distress symptoms related to diabetes. Validated and used in >25 publications. The DDS-2 will be given to those above 11 years old. DDS-P will be given to all parents. The surveys take 5 min to complete.
Youth-only outcomes
Diabetes technology attitudes Naranjo et al. (38) Subjective questions about attitudes related to diabetes technologies and devices. Predictive of outcomes and interacts with diabetes distress. Has 6 items; 2 min to complete.
PROMIS Global Health
(7-item Global Health) Forrest et al. (39)
This survey was developed by the PROMIS team and measures aspects of physical and mental health; 7 items and 3 min to complete. We have found it to be sensitive to picking up general quality of life changes.
CGM Benefits and Burden Scale Messer et al. (40) This survey is a 16-item survey that evaluates perceived benefits (8 items) and burden (8 items) specific to CGM use.

PROs, patient-reported outcomes.