Table 1.
Topic | Construct measured/relevant points |
---|---|
Youth and parent outcomes—diabetes distress | |
Diabetes distress (Diabetes Distress Scale) Fisher et al. (37) |
The DDS-2 (2 item youth survey) and DDS-P (20 item parent survey) are commonly used measures to understand distress symptoms related to diabetes. Validated and used in >25 publications. The DDS-2 will be given to those above 11 years old. DDS-P will be given to all parents. The surveys take 5 min to complete. |
Youth-only outcomes | |
Diabetes technology attitudes Naranjo et al. (38) | Subjective questions about attitudes related to diabetes technologies and devices. Predictive of outcomes and interacts with diabetes distress. Has 6 items; 2 min to complete. |
PROMIS Global Health (7-item Global Health) Forrest et al. (39) |
This survey was developed by the PROMIS team and measures aspects of physical and mental health; 7 items and 3 min to complete. We have found it to be sensitive to picking up general quality of life changes. |
CGM Benefits and Burden Scale Messer et al. (40) | This survey is a 16-item survey that evaluates perceived benefits (8 items) and burden (8 items) specific to CGM use. |
PROs, patient-reported outcomes.