Table 1.
Demographics, comorbidities, non-invasive urodynamics, voiding diaries and results of patient-reported outcomes (PROs). PinQ = Pediatric Incontinence Quality of Life questionnaire, BBD = bowel and bladder dysfunction
| All patients |
||
|---|---|---|
| n | % | |
| Unique patients | 36 | 100% |
| Total visits | 142 | 100% |
| Demographics | ||
| Age (range) | 16.9 years (7.2–30.7) | |
| F | 23 | 64% |
| M | 13 | 36% |
| Comorbidities | ||
| Diabetes mellitus | 33/36 | 92% |
| Diabetes insipidus | 22/36 | 61% |
| Optic atrophy | 34/36 | 94% |
| Hearing loss | 29/36 | 81% |
| Clean-intermittent catheterization | 3/36 | 8% |
| Polyuria (based on voiding diaries) | 7/24 | 29% |
| Non-invasive urodynamics | ||
| Uroflowmetry | 84 tests in 32 patients | |
| Normal uroflowmetry | 62 | 74% |
| Disordered uroflowmetry | 22 | 26% |
| Unique patients with any disordered uroflow | 15 | 44% |
| Post-void residual | 96 tests in 35 patients | |
| Normal post-void residual | 65 | 68% |
| Increased post-void residual | 31 | 32% |
| Unique patients with any increased PVR | 19 | 54% |
| Functional bladder capacity | 70 measurements in 34 patients | |
| Decreased | 22 | 31% |
| Normal | 38 | 54% |
| Increased | 10 | 14% |
| Diaries | ||
| Voiding diary | 57 diaries in 23 patients | |
| Stool diary | 27 diaries in 17 patients | |
| Mean voids per day (range) | 5.7 voids (1–14) | |
| Mean stools per day (range) | 2.1 stools (0.3–5.0) | |
| Mean Bristol stool score (range) | 4 (1–7) | |
| Proportion hard (Bristol 1–2) | 48 | 23% |
| Proportion normal (Bristol 3–4) | 71 | 34% |
| Proportion loose (Bristol 5–7) | 90 | 43% |
| Questionnaires | ||
| PinQ (max score = 80) | 70 questionnaires in 31 patients | |
| Mean score (range) | 10.1 (0–67) | |
| Toronto BBD (max score = 30) | 71 questionnaires in 32 patients | |
| Mean score (range) | 11.7 (1–31) | |
| Compass-31 (max score = 31) | 41 questionnaires in 28 patients | |
| Mean score (range) | 16.4 (0–31) | |