Table 1.
Endometriosis related questionnaires.
| Questionnaires | Number of Questions | Domains | Scores | What Does it Assess? | References |
|---|---|---|---|---|---|
| Short Form 36 (SF-36) | 36 items | Eight domains: vitality, mental health, bodily pain, general health perceptions, physical, role-physical, social and role emotional functioning | Scores range from 0 to 100, with higher scores indicating better QoL | QoL | Ware JE Jr et al. [40] (1992) |
| Short Form 12 (SF-12) | 12 items | Eight domains: vitality, mental health, bodily pain, general health perceptions, physical, role-physical, social and role emotional functioning | Scores range from 0 to 100, with higher scores indicating better QoL | QoL | Gandek B et al. [41,42,43] (1998) |
| Nottingham Health Profile (NHP) | Part I: 38 items Part II: 7 items |
Part I: six domains (physical abilities, pain, sleep, social isolation, emotional reactions and energy level) Part II: seven domains (problems on employment, jobs around the house, personal relationships, social and sex life, hobbies and holidays) |
All questions have only yes/no answer options and each section score (maximum 100) is weighted. | QoL | Bourdel N et al. [44] (2019) |
| World Health Organization Quality of Life Assessment-BREF (WHOQOL-BREF) | 26 items | Four domains: physical, psychological, social, and environmental health | Scores for each item range from 1 to 5, with the highest score indicating the best QoL | QoL | The WHOQOL Group [45] (1998) |
| Duke Health Profile (DUKE) | 17 items | Six health measures (physical, mental, social, perceived health, and self-esteem) and four dysfunction measures (anxiety, depression, pain, and disability). | Scores for each measure range from 0 to 100. For health measures high score = good health; for dysfunction measures high score = poor health | QoL | Parkerson GR Jr et al. [46] (1990) |
| Euro QOL-5-dimension instrument (EQ-5D) | 5 items | Five dimensions: mobility, self-care, daily activities, pain, and emotional well-being (depression or anxiety) + EQ Visual Analog Scale (EQ-VAS) on health status |
Scores expressed initially as a 5-digit number can be converted into a single weighted index score that describes the patient’s health state. + VAS with a grade ranging from 0 (the worst possible health status) to 100 (the best possible health status) |
QoL | EuroQol Group [47] (1990) |
| 15-Dimensional (15D) | 15 items | Breathing, mental function, speech (communication), vision, mobility, usual activities, vitality, hearing, eating, elimination, sleeping, distress, discomfort and symptoms, sexual activity, and depression. | The single index score uses a 0–1 scale (1 corresponds to no problems on any dimension) | QoL | Sintonen H [48] (2001) |
| Health Related Productivity Questionnaire (HRPQ) | 9 items | Four sections evaluating also absenteeism (missed work hours at paid employment, in the home, or at educational activities) and presenteeism (reduced effectiveness during any work that is attempted) + an optional section for younger age-group patients and those pursuing education | Specific algorithm | Work productivity | Soliman AM et al. [49] (2017) |
| Personal Wellbeing Index (PWI) | 8 items | Seven domains: standard of living, achievement in life, relationships, safety, connection with the community, future safety, overall life satisfaction | Score range from 0 (completely dissatisfied) to 10 (completely satisfied) | SWB | Rush G et al. [35] (2018) |
| DYSP diary | Single items | Intensity of dyspareunia during 24 h | Absent (no discomfort during SI), Mild (tolerable discomfort), Moderate (SI interrupted), Severe (SI avoided) | Dysp | Pokrzywinski R et al. [50,51,52] (2020) |
| Questionnaire on Sexual Health Outcomes in Women (SHOW-Q) | 12 items | Sexual satisfaction, orgasm, sexual desire, and pelvic problem interference with intercourse | All items were scored on a scale from 0 to 100; higher scores represent better sexual function except for the fourth domain. The overall score corresponds to an average of the 12 articles |
SQoL | Learman LA et al. [53] (2008) |
| Female Sexual Function Index (FSFI) | 19 items | Six domains: desire, subjective arousal, lubrication, orgasm, satisfaction, and pain | Each domain is scored from 0 to 6: higher scores indicate better sexual function. Total score of the questionnaire ranges from 2 to 36. | SQoL | ter Kuile MM et al. [54] (2006) |
| Female Sexual Distress Scale-Revised (FSDS-R) | 13 items | Sexual distress | Every item requires an answer that is rated from 0 (never) to 4 (always). The total score, ranging from 0 to 48 | SQoL | Derogatis L et al. [55] (2008) |
| Endometriosis Health Profile-30 (EHP-30) | Core instrument: 30 items Modular section: 23 items |
Core items: pain, control and powerlessness, emotional well-being, social support, and self-image. Modular items: work, relationship with children, sexual relationship, feelings about medical profession, feelings about treatment, feelings about infertility | Each scale is standardized on a score ranging from 0 to 100, where the lowest score represents the best health status. | QoL | Jones G et al. [56] (2004) |
| Endometriosis Health Profile-5 (EHP-5) | 11 items | Core questionnaires (pain, control and powerlessness, emotions, social support, self-image) and modular questionnaires (work-life, relation with children, sexual intercourse, medical profession, treatment and infertility | Total score ranging on a scale from 0 (indicating best possible health status) to 100 (indicating worst possible health status). | QoL | Jones G et al. [57] (2004) |
QoL: quality of life; SI: sexual intercourse; Dysp: dyspareunia; SBW: subjective well-being; SQoL: sexual quality of life.