Word of welcome: Thank you for coming, let me introduce myself.
Explanation about the study: Maastro and the Netherlands Cancer Institute are currently developing a patient decision aid to support “shared decision making” for patients who have a choice between whether or not to undergo radiotherapy. As part of the development, we would like the input form clinicians: doctors, physician assistants and nurse specialists.
This conversation will take about 35 min and with your permission I will record the whole conversation so that I can use it for scientific research. After analysing the information, I will delete the recording and the information will remain anonymous. Do you give consent for this?
Could you introduce yourself?
What information is given to patients in your hospital concerning the radiotherapy?
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From whom do patients get this information, at what time-point?
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Do you refer patients to websites or other sources of information?
How much information do you give to patients?
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What information is the most relevant? And what information can you burden a patient with?
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Do you adapt the information to the patient sitting in front of you, and if so, how?
Do you always discuss the possible options with the patient?
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To what extent do you think that patients can participate in deciding on their own treatment?
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How do you apply shared decision making in your own practice?
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What is needed to facilitate the application of SDM?
As I mentioned earlier, we are currently developing a patient decision aid for patients who have a choice whether or not to undergo radiotherapy. In the patient decision aid we want to provide information about the radiation treatment including the benefits as well as the side effects.
Do you already have experience with use of a patient decision aid?
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What is your experience with a patient decision aid and do you already use one in your practice? What are the reasons for using/not using one?
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Would you use one if it was available?
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At what point in the treatment would you want to use one, and how?
What do you think should be definitely covered in a patient decision aid for these breast cancer patients?
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Which numbers/percentages should be given?
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Would you like to see pictures/videos in the patient decision aid, and if so, which?
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What do you think about an online patient decision aid?
These were all my questions. I would like to thank you for this interview. Do you have any other questions? Should you have any questions later, then please contact me. |
