Table 1.
Family Member Characteristics Overall and by Treatment-Based Focus Group Assignment
| Characteristics | Overall (n = 49) | Treatment-Based Focus Group Assignment |
|||
|---|---|---|---|---|---|
| In-Center Hemodialysis (n = 13) | Home Hemodialysis (n = 6) | Peritoneal Dialysis (n = 10) | Posttransplantation (n = 20) | ||
| Age,a y | 56 [23-80] | 59 [44-80] | 42 [37-52] | 59 [45-75] | 55 [23-79] |
| Race | |||||
| African American | 26 (53%) | 7 (54%) | 3 (50%) | 7 (70%) | 9 (45%) |
| White | 19 (39%) | 6 (46%) | 1 (17%) | 2 (20%) | 10 (50%) |
| Other | 4 (8%) | 0 (0%) | 2 (33%) | 1 (10%) | 1 (5%) |
| Sex | |||||
| Female | 31 (63%) | 10 (77%) | 6 (100%) | 7 (70%) | 8 (40%) |
| Education | |||||
| High school graduate | 20 (41%) | 9 (69%) | 0 (0%) | 4 (40%) | 7 (35%) |
| At least 2 y of college | 3 (6%) | 0 (0%) | 2 (33%) | 1 (10%) | 0 (0%) |
| ≥College degree | 26 (53%) | 4 (30%) | 4 (67%) | 5 (50%) | 13 (65%) |
| Marital status | |||||
| Married/living with partner | 36 (73%) | 9 (69%) | 4 (66%) | 7 (70%) | 16 (80%) |
| Divorced/separated | 5 (10%) | 2 (15%) | 1 (17%) | 0 (0%) | 2 (10%) |
| Never married | 5 (10%) | 2 (15%) | 1 (17%) | 1 (10%) | 1 (5%) |
| Widowed | 3 (6%) | 0 (0%) | 0 (0%) | 2 (20%) | 1 (5%) |
| Health insurancea | |||||
| Insured | 47 (96%) | 11 (85%) | 6 (100%) | 10 (100%) | 20 (100%) |
| Relationship to patient | |||||
| Spouse/partner | 23 (47%) | 5 (38%) | 3 (50%) | 4 (40%) | 11 (55%) |
| Sibling | 8 (16%) | 2 (15%) | 2 (33%) | 4 (40%) | 0 (0%) |
| Parent/parent-in-law | 7 (14%) | 3 (23%) | 0 (0%) | 0 (0%) | 4 (20%) |
| Friend | 6 (12%) | 1 (8%) | 1 (17%) | 2 (20%) | 2 (10%) |
| Child | 3 (6%) | 2 (15%) | 0 (0%) | 0 (0%) | 1 (5%) |
| Cousin | 2 (4%) | 0 (0%) | 0 (0%) | 0 (0%) | 2 (10%) |
Note: Values given as number (percentage) except for age, which is given as mean [range]. Focus groups were stratified by patients’ treatment experiences in the past year (in-center hemodialysis, home hemodialysis, peritoneal dialysis, and living donor kidney transplantation or posttransplantation) and family members’ self-reported race (African American or non–African American), thereby resulting in 8 focus groups, with 2 groups per treatment experience. The number of participants identifying as African American signifies the number of people who participated in 1 treatment group and the number identifying as white or other signifies the number of people who participated in the accompanying treatment group for a given treatment experience.
Missing data for age (in-center hemodialysis, n = 2; home hemodialysis, n = 3; peritoneal dialysis, n = 4; posttransplantation, n = 3) and health insurance (in-center hemodialysis, n = 1).