Table 11.

Illustrative quotes related to using the professional web tool: perceived disadvantages.

Id	Concern	Interviewee		Quote
D1	Useful with patients’ information		Doctor, C4	“[...] so, if they [patients] don’t fill it in, the clinician won’t look at it [...]; Do you see an impact if the app was used in real practice? a I think that it is only the case if patients often fill information. If not frequently used, then it is also difficult to say what the impact is on their daily life and whether it will reflect on compliance or whether you could use it for symptom control or looking for causes of abdominal pain.”
D2	Patients will not use app regularly		Doctor, C2	What do you mean with “it has already a lot of impact in the daily life”?a“Like the normal CF therapy, taking pills, doing nebulisation, doing physiotherapy, they have to do sports, think about Creon, so they have to think about collecting their medication in time at the pharmacy, if it is warm, they have to take salt supplements, ... Well it goes on and on and on. It is quite an organisation already. And, if you have more children or more children with CF, that is even harder to handle. If you then ask the parents “well, you just have to fill in the app once or twice a day”, it adds to all the other things that you need to do and look at yourself. You really have to think about how it impacts on the daily life of family, sometimes it is a real fulltime job. There are parents who stop working because of taking care of the children.”
D3	A close follow-up is time consuming		Dietician, C2	Do you feel that the tool requires a lot of effort if you have to follow-up tightly?a “Yes. It does take a lot of time and now it is just 17 patients. But if all of our patients were using it which is like 150 patients. I could not send 150 patients a message twice a week.”
D4	A close follow-up is time consuming, extra effort for clinicians		Doctor, C2	If you had these shared data, would you look at them between consultations or just during the consultation?a“Maybe, if it was very easy to access, it would be quite useful, I think. Also, between consultations? [...] I think I would not look at the data when the patients are not coming for consultation. We don’t have time to do that; [...] it takes effort for clinicians to log in into the system and to look up all the data. [...] We have the luxury to have 20 min per patient, but still this is quite short, and we have to administrate everything and also talk to the parents, find a plan and execute your plan as well.”

^aText in italics are questions to health care professionals.