Table 3.

Illustrative quotes related to using the self-management app: varying motivation to use the app.

Id	Concern	Interviewee	Quote
M1	Motivation: health improvement	Mother of 6-year-old and 10-year-old children, C4	“Getting a little bit of weight. A lot less poo. You can see the nutrition. And you can see it helps. That is a big motivation. And you know that the enzymes are important. And you have to take the right dose. So that is a big motivation.”
M2	Motivation: self-efficacy	Parents of a 6-year-old child, C2	Father: “It gives us an answer. Those doses of Creon are rather useful. And surprising.” Mother: “It feels that we can now do something ourselves. It is not something we do because the hospital asked us. It is something we do because we want to help our daughter to improve her condition.”
M3	Lack of motivation: no patience, enough knowledge	Mother of an 11-year-old child, C3	“My daughter started looking at the app and said she had no patience for that and would not use it at school. [...] She does not want to bother with it as she already knows the enzyme dosage and do it herself alone, which is great.”
M4	Decreasing motivation: long trial	Dietician, C2	“In the beginning, most of them use the app a lot. Every month it became less, and less and less. For some, 6 months was really a long time.”
M5	Lack of motivation: limited time, break of routine	Dietician, C4	“We see that when they are going to school, they have like a structure and everything is going better, but when the summer starts, they are not that motivated anymore. Especially when they are going on holidays, when they are travelling, then they really don’t like using the app. Because it is time consuming and they don’t want to think of it.”