Table 7.

Illustrative quotes related to using the self-management app: other features (health diary, educational handbook, and messages from health care professionals).

Id	Concern	Interviewee	Quote
O1	Health diary: more efficient consultation	Mother of an 11-year-old child, C3	“I actually found it useful. We try to register if our daughter goes to the bathroom or not, every day. Or if she has belly pain. [...] I think I used this most so that the doctor would know what happens with my daughter and so that I would not forget anything. Also the consultation was faster.”
O2	Health diary: a tool for reflection, increased well-being	Mother of an 11-year-old child, C3	“This part where you are asked if you feel well, happy, ... I ask my daughter in the evening if we can sit together and reflect about the day. It is just a click, and she finds it fun. It is the fastest part of all, the part she liked the most. Also, this makes us talk about school, the part I liked most [...] In these 5 minutes at the end of the day, we sat together and she told if she was happy, if she had had pain.”
O3	Educational handbook: better than the internet	15-year-old teen, C3	“And also the handbook. It helped because nowadays there is not much information which is specific in the Internet. Such as to explain the enzymes, how to improve things, which sports to practice. This you can’t find in the web easily.”
O4	Educational handbook: rather use the internet	Parents of a 6-year-old child, C2	“If we want to look up something, we will look for it on the Internet or call the hospital. There are so many other means to find information.”
O5	Educational handbook: useful to explain cystic fibrosis	Mother of 6-year-old and 10-year-old children, C4	“We read it. We like it a lot. [about 10yo child] She read it to and understood. She used the text from the app, but she made her own text and presented it to the class. And everybody understood.”
O6	Messages: personalized motivational messages	Mother of 6-year-old and 10-year-old children, C4	“The dietician sent us messages. “Very good. You do a good job.” My daughter was sick for a few weeks, and she [the dietician] sent some solutions: “Get a bit of pudding and milk and yogurt.” “You have to drink that and eat that. You are doing fine.””
O7	Messages: encouraging messages, but generic	Father of a 3-year-old child, C2	““Good job, thanks for filling in, you are doing good.” Yes, it was very positive. It was good to receive, but we thought it was some kind of computer. (laugh) To be honest. Sometimes it was the same messages.”
O8	Messages: lack support for messaging to HCPsa	Dietician, C1	“Some patients lacked the possibility to send messages to us through the app and PWT, which is something I would probably not include. It would be fine if the patients used it with moderation. Otherwise, something good can become something terrible.”

^aHCP: health care professional.