Table 1.
Parameters | Definition | Criteria/examples |
Source of recruitment | The method used to recruit each youth. | In clinic, postal mail, phone, social media |
Recruitment rates | From a list of patients with AMCa followed, the number of eligible youths will be determined. Those that are reachable will be accounted. | ≥50% of eligible and reachable youths |
Withdrawal rates (before the intervention) |
Youths who will consent to participate but will withdraw before the start of the intervention will be accounted. | ≤20% of the youths who consent |
Withdrawal rates (during the course of the intervention) |
Youths who will complete at least one telerehabilitation meeting and will decide to withdraw afterward will be counted. The time points when they decide to withdraw will be collected as well as the reason, if applicable. | ≤30% of the youths who start the intervention |
Completion rates | The number of youths who will complete all 6 telerehabilitation meetings out of those who have consented. | ≥50% of the youths who consent |
Compliance to the HEPb | The amount of time youths performed their HEP will be collected using a participant-completed log sheet and data from the physical activity monitor. | ≥50% of compliance to the HEP |
Compliance to the telerehabilitation meetings | The number of meetings cancelled the same day among the meetings that occurred, as well as lateness to the meetings. Lateness is defined as joining the meeting 15 minutes or more after the scheduled time. | ≤15% of the meetings |
Missing data | The number of questionnaires not completed and the number of unusable range-of-motion data. | ≤10% for each outcome |
Technical issues | Problems that will arise and disrupt or delay the meeting or possibly prevent the telerehabilitation meeting from taking place. | Echo voices, connection, image quality |
aAMC: arthrogryposis multiplex congenita.
bHEP: home-based exercise program.