Table 3.
Administrative data collection details including source, time range, and barriers to data collection for the Sickle Cell Disease Treatment Demonstration Program, funding cycle 2014-2017
| Region | State/Source (State Medicaid or Medicaid MCO) | Timepoint/Date Range |
Barriers |
|---|---|---|---|
| Heartland | Iowaa: Illinois Medicaid | 2014 through second quarter 2016 | State reported resource constraints that precluded its ability to collect data despite RCC offers to fund data collection |
| Kansas: Medicaid | 2014 | — | |
| Missouria: Medicaid; Illinois Medicaid | 2014 through second quarter 2016 | — | |
| Nebraska | Data not submitted | State reported resource constraints that precluded its ability to collect data despite RCC offers to fund data collection | |
| Midwest | Illinoisb: Medicaid | Third quarter 2014 through second quarter 2016 | — |
| Indiana: Medicaid | Third quarter 2014 through second quarter 2015 | — | |
| Michigan: Medicaid | First quarter 2014 through third quarter 2016 | — | |
| Minnesota | Data not submitted | — | |
| Ohio: Medicaid | 2015 | — | |
| Wisconsin | Data not submitted | — | |
| Northeast | Delaware | Data not submitted | Cost prohibitive ($30 000) |
| District of Columbia: AmeriHealth MCO, Trusted MCO, Health Services for Children with Special Needs (HSCSN) MCO | Third quarter 2015 (AmeriHealth and Trusted) Third quarter 2014 through third quarter 2015 (HSCSN) |
— | |
| Maryland: Medicaid | First quarter 2015 through second quarter 2016 | — | |
| New Jersey: Horizon MCO | First quarter 2014 through first quarter 2016 | — | |
| New York | Data not submitted | — | |
| Pennsylvania | Data not submitted | No contact person | |
| Puerto Rico | Data not submitted | No funding; red tape | |
| US Virgin Islands | Data not submitted | No contact person | |
| Virginia MCO | Data suppressedc | Low numbers and differences in measure definitions | |
| West Virginia | Data not submitted | Small numbers | |
| Pacific | Alaska: Fee for Service (FFS) | Third quarter 2014 through third quarter 2016 | — |
| Arizona | Did not participate | — | |
| California: MCO and FFS | Third quarter 2014 through third quarter 2015 | — | |
| Guam | Did not participate | — | |
| Hawaii | Did not participate | — | |
| Idaho: Medicaid | 2014 | — | |
| Nevada: Medicaid | Third quarter 2014 through second quarter 2015 | — | |
| Oregon: MCO and FFS combined | Third quarter 2013 through third quarter 2016 | — | |
| Washington: MCO and FFS | Third quarter 2014 through third quarter 2015 | — |
Abbreviations: —, none noted; FFS, fee for service; MCO, managed care organization; RCC, regional coordinating center.
aThe Iowa and Missouri data from the Illinois Medicaid office.
bIncludes data from patients living in Indiana, Iowa, Missouri, and Wisconsin, but receiving care from providers in Illinois.
cVirginia MCO data were received but suppressed due to low numbers and differences in measure definitions.