Table 1.
Drivers (n) |
Teens (% of the drivers) |
Adults (% of drivers) | Quotes from teenagers | |
---|---|---|---|---|
Negative drivers (barriers) N = 2100 | Feeling alone | 32 | 23 | “I'm 16 and…I was wondering if anyone else feels kinda alone with epilepsy and like when you tell someone they'll just freak out…” |
Low spirit | 25 | 31 | “My math teacher called me up in front of the class and said, "If you feel like 'something' is going to happen, just leave the room." there was a huge amount of twittering and giggling!” | |
Social embarrassment | 28 | 17 | “I am having a really hard time lately… I'm very depressed (suicidal even), and not finding much joy in life." | |
Sense of loss | 15 | 29 | “I'm just super annoyed with my epilepsy. It's been limiting what I can do…I can't do anything. Not only have I been having more seizures, but I also have panic and anxiety attacks.” | |
Positive drivers, N = 96 | Encouragement via connection | 50 | 38 | “I haven't been treated any differently around my friends because of my epilepsy but I have GREAT friends. “ |
Empowerment over the epilepsy | 41 | 23 | “ Forget the shame u may feel figure out what it is u wanna do in life make it happen it's all still possible." | |
Adaptation to epilepsy | 9 | 39 | “Asking myself "Why me" I'm on my 3rd year of gran[d] mal epilepsy disorder doing much better… “ | |
Neutral drivers, N = 960 | Emotional connection | 45 | 29 | “I was diagnosed with epilepsy about 6 months ago and I have been having some trouble processing everything. Does anyone have any suggestions to help? “ |
Support | 37 | 22 | “Hey everyone! …I was wondering if anyone would like me to start a snapchat so we could chat on there?” | |
Information and resources | 18 | 49 | “Hey everyone… I got epilepsy when I was two 1/2… I am trying to look for a support group and meet new people in my area with epilepsy… Does anyone know any places? I am going to try this one too.” |