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. 2020 May 8;61(5):951–958. doi: 10.1111/epi.16507

Table 1.

Sentiment analysis of conversation “drivers”

Drivers (n)  

Teens

(% of the drivers)

Adults (% of drivers) Quotes from teenagers
Negative drivers (barriers) N = 2100 Feeling alone 32 23 “I'm 16 and…I was wondering if anyone else feels kinda alone with epilepsy and like when you tell someone they'll just freak out…”
  Low spirit 25 31 “My math teacher called me up in front of the class and said, "If you feel like 'something' is going to happen, just leave the room." there was a huge amount of twittering and giggling!”
  Social embarrassment 28 17 “I am having a really hard time lately… I'm very depressed (suicidal even), and not finding much joy in life."
  Sense of loss 15 29 “I'm just super annoyed with my epilepsy. It's been limiting what I can do…I can't do anything. Not only have I been having more seizures, but I also have panic and anxiety attacks.”
Positive drivers, N = 96 Encouragement via connection 50 38 “I haven't been treated any differently around my friends because of my epilepsy but I have GREAT friends. “
  Empowerment over the epilepsy 41 23 “ Forget the shame u may feel figure out what it is u wanna do in life make it happen it's all still possible."
  Adaptation to epilepsy 9 39 “Asking myself "Why me" I'm on my 3rd year of gran[d] mal epilepsy disorder doing much better… “
Neutral drivers, N = 960 Emotional connection 45 29 “I was diagnosed with epilepsy about 6 months ago and I have been having some trouble processing everything. Does anyone have any suggestions to help? “
  Support 37 22 “Hey everyone! …I was wondering if anyone would like me to start a snapchat so we could chat on there?”
  Information and resources 18 49 “Hey everyone… I got epilepsy when I was two 1/2… I am trying to look for a support group and meet new people in my area with epilepsy… Does anyone know any places? I am going to try this one too.”