Table 3.
Patient Experiences of Advance Care Planning Discussions with Clinicians
| Has a member of the clinical team talked to you about… | All Patients (n = 31) |
Patients Without Care Partners (n = 20) |
Patients With Care Partners (n = 11) |
Care Partners (n = 11) |
||||
|---|---|---|---|---|---|---|---|---|
| Yes | No | Yes | No | Yes | No | Yes | No | |
| Prognosis | 8 (26%) | 22 (71%) | 5 (25%) | 14 (70%) | 3 (27%) | 8 (73%) | 1 (9%) | 9 (82%) |
| Outcomes of life-sustaining medical treatments | 5 (16%) | 26 (84%) | 4 (20%) | 16 (80%) | 1 (9%) | 10 (91%) | 3 (27%) | 7 (64%) |
| Outcomes of conservative care | 3 (10%) | 28 (90%) | 2 (10%) | 18 (90%) | 1 (9%) | 10 (91%) | 4 (36%) | 6 (55%) |
| You and your family meeting with the clinician to discuss treatment options | 6 (19%) | 24 (77%) | 4 (20%) | 15 (75%) | 2 (18%) | 9 (82%) | 6 (55%) | 4 (36%) |
| Prior discussions or documents regarding life-sustaining treatments | 5 (16%) | 24 (77%) | 4 (20%) | 14 (70%) | 1 (9%) | 10 (91%) | 7 (64%) | 2 (18%) |
| What is important to you/your loved ones regarding health care decisions at this stage of your life | 5 (16%) | 25 (81%) | 4 (20%) | 15 (70%) | 1 (9%) | 10 (91%) | 4 (36%) | 5 (46%) |
| Your fears or concerns | 14 (45%) | 16 (52%) | 11 (55%) | 8 (40%) | 3 (27%) | 8 (73%) | 6 (55%) | 2 (18%) |
| Any questions or clarifications regarding your overall goals of care | 12 (39%) | 17 (55%) | 7 (35%) | 11 (55%) | 5 (45%) | 6 (55%) | 5 (46%) | 4 (36%) |
| Treatments you prefer to have or not have if you develop a life-threatening illness | 6 (19%) | 24 (77%) | 5 (25%) | 14 (70%) | 1 (9%) | 10 (91%) | 3 (27%) | 4 (36%) |
| The option to change your mind regarding decisions around the goals of care | 13 (42%) | 16 (52%) | 10 (50%) | 8 (40%) | 3 (27%) | 8 (73%) | 4 (40%) | 3 (30%) |
| An opportunity to discuss capacity and consent with regard to advance care planning | 2 (7%) | 26 (84%) | 2 (10%) | 15 (75%) | 0 (0%) | 11 (100%) | 3 (27%) | 5 (46%) |
| Support from the allied health care team as needed? | 2 (75%) | 29 (93%) | 2 (10%) | 18 (90%) | 0 (0%) | 11 (100%) | 6 (55%) | 5 (46%) |
| ”Goals of care discussion” information to look at before conversations with the clinician? | 3 (10%) | 26 (84%) | 3 (15%) | 15 (75%) | 0 (0%) | 11 (100%) | 4 (36%) | 5 (46%) |
| Accessing legal documents to communicate you/your loved one’s Advance Care Plans? | 7 (23%) | 24 (77%) | 5 (25%) | 15 (75%) | 2 (18%) | 9 (82%) | 3 (27%) | 8 (73%) |
Note. Numbers reflect the frequency with which each response was selected. Values given as number (percent). The survey measures have been abbreviated for clarity.