Table 1.
Demographic characteristics of participants in NBS and PKU questionnaires.
| NBS questionnaire (%) n = 1000 | PKU questionnaire (%) n = 228 | |
|---|---|---|
| Gender | ||
| Female | 70 | 49a |
| Male | 30 | 51a |
| Region of residence in Brazil | ||
| North and Midwest | 20 | 8 |
| Northeast | 20 | 11 |
| Southeast | 40 | 55 |
| South | 20 | 26 |
| Family income per minimum monthly salaries | ||
| Up to 3 (Up to R$ 2,994) | 45 | 37 |
| From 3 to 8 (From R$ 2,995 to R$ 6,986) | 22 | 22 |
| From 7 to 15 (From R$ 6,987 to R$ 14,970) | 7 | 8 |
| Above 15 (Over R$ 14,971) | 9 | 8 |
| Did not answered | 17 | 25 |
| Educational level | ||
| No school/some primary school | 3 | 48 |
| Primary school graduate | 3 | 17 |
| Some high school | 12 | 12 |
| High school graduate/Some college | 53 | 13 |
| College degree | 29 | 10 |
| Participants | ||
| Patients with PKU | – | 14 |
| Caregiver | – | 86 |
| Age | ||
| 18–24 years | 40 | – |
| 25–34 years | 37 | – |
| ≥35 years | 23 | – |
| Child's age | ||
| Under a year-old | 44 | – |
| 1-year-old | 12 | – |
| 2-year-old | 9 | – |
| 3-year-old | 7 | – |
| 4-year-old | 4 | – |
| 5-year-old | 24 | – |
| Birth setting | ||
| Private hospital | 37 | – |
| Public hospital | 59 | – |
| At home | 4 | – |
a
Refers to the gender of patients with PKU.