2. Types of outcome measure used in included studies.

Study ID	Primary Outcomes	Secondary Outcomes
Belsky 1994	Physiological: pulmonary function ‐ Average PEFR Height Weight Well‐being: child behavior, anxiety	Impact on family Ratings of the parents' assessment of the child's illness Locus of control and health locus of control Self‐concept
Chernoff 2002	Well being: depression, anxiety
Christian 2006	Pulmonary function Height Weight	Perceived Illness Experience Scale Children's Loneliness Scale Social Support Scale for Children Self‐Perception Profile for Children Functional Health Status
Delk 1994	Pulmonary function
Goodill 2005	Well‐being: mood state	Body image Adherence
Grasso 2000		Enjoyment & perception of time
Hernandez‐Reif 1999	Well‐being: anxiety/depression Pulmonary function
Powers 2003	Weight	Calorie intake Relational
Powers 2005	Weight Height	Calorie consumption
Quinn 2004	Well‐being: anxiety, depression, quality of life Pulmonary function	Adherence behaviour to aerosolised antibiotics
Stark 1996	Pulmonary function Weight and height	Activity level
Stark 2003	Weight	Daily calorie intake Quality of parent/child interaction at mealtime CF coping skills Adherence to CF regimen
Stark 2009	Change in weight BMI Pulmonary function	Caloric intake, energy (%EER)
Taylor 2003	Pulmonary function BMI	Health care utilization
Vandemheen 2009		Participants’ knowledge and realistic expectations Decisional conflict
Wilkinson 2008	Well‐being: quality of life, anxiety, depression	Coping of carers Health care utilization

Some parts are empty for the following reason: We summarized all reported outcomes of the 16 included studies in this table and categorized them according to our determined primary and secondary outcomes.

BMI: body mass index
EER: estimated energy requirements
PEFR: peak expiratory flow rate