Study	Reason for exclusion
Barbero 1996	This is a lecture with a broad remit and does not describe an intervention study.
Bartholomew 1997	This was pre‐post design ‐ participants were not randomised to the treatment and comparison groups.
Bingham 2010	This is a study on breath biofeedback ‐ the study had no comparision group (no RCT design).
Brady 1991	The intervention is neither psychological nor does it have a psychosocial focus.
Brandt 1996	This is not an intervention study ‐ it is a cross‐sectional survey.
Brown 1994	This is not an intervention study ‐ it is a case‐control study without a psychosocial focus.
Castellani 2011	This is a study on an interactive computer‐based program for education in cystic fibrosis carrier tests. The participants were not a population of interest (participants did not have CF or were family members of patients with CF).
Cheuvront 1998	This is a parallel RCT to evaulate two approaches to CF gene pre‐test education and carrier testing. Genetic clinic education and testing versus Home‐based education and testing. The approaches were both educational which are by defintion not eligible for this update of the review.
Clayton 1995	This a study of population screening. The participants do not have CF nor related to anyone with CF ‐ they were also not CF carriers and had no higher than the average risk of being a carrier.
Davis 2002	This is a parallel RCT comparing an educational intervention using a CD‐ROM with a wait list control. The approach was educational which is by defintion not eligible for this update of the review.
Dodd 1997	This is not an intervention study ‐ it is a study validating a psychological measure on a CF population.
Dodd 2001	This is a study on motivational interviewing for exercise performance in patients with cystic fibrosis. Data has not been published in a journal article and is not available via the author anymore.
Donaldson 1995	This study is a survey of attitudes and a comparison of 2 approaches to population screening. The participants do not have CF nor are they related to anyone with CF ‐ there is no higher risk of their being a carrier than average.
Downs 2006	This is a multi‐centre parallel RCT investigating the effectiveness of a self‐management education programme called ’Airways’. The approach was educational which is by defintion not eligible for this update of the review.
Eng 1997	This was a study of attitudes towards screening for CF in a population of Askenazi Jews referred for TSD testing. There was no comparison group and no higher risk of being a CF carrier than average.
Falkman 1977	This is not an intervention study ‐ it is a descriptive study of a random sample of children with CF.
Gee 2000	This is not an intervention study ‐ it is a report of a part of the development of a psychological measure for CF.
Georgiopoulos 2011	This is a study on ADHD treatment. It is a chart review.
Goa 1997	This is not an intervention study it is a review of the literature. The intervention reviewed is not psychological although the reported outcomes are psychosocial.
Goldbeck 2001	This study has a pre‐post design ‐ there is no comparison group.
Goldbeck 2011a	This is a study on an inpatient rehabilitation program (including psychological intervention), but there was no control group for comparing outcomes of the program.
Gonciartz 1988	This study is not concerned with CF although some of the participants may have had CF. The intervention is not psychological nor does it have a psychosocial focus.
Green 1995	This is a report of a survey of obstetricians views and not an intervention study. The participants do not have CF nor are they related to anyone with CF although they may have a professional relationship with someone with CF.
Gremse 1998	This is a descriptive case‐control study and not an intervention study.
Grody 1997	This is a study of population screening ‐ the participants have no history of CF and no higher than the average risk of being a carrier for CF.
Gulmans 1999	There was no comparison group in this study.
Haddow 1999	This was not an intervention study ‐ it was a summary of the views of professionals who were attending a conference regarding screening for CF.
Hains 2001	This intervention study has no comparison group.
Hains 1997	This intervention study has no comparison group.
Hodson 1997	This is a descriptive case‐control study ‐ it is not an intervention study.
Jelalian 1998	This is not an intervention study ‐ it is a review of the literature and meta‐analysis of interventions for CF. Only 1 of the studies described is a RCT and that is reported separately here (Stark 1996).
Johnson 2001	This intervention study has no comparison group.
Kollberg 1982	This is a descriptive account ‐ it is not an intervention study.
Krauth 1999	The intervention in this study was not psychological nor did it have a psychosocial focus.
Le Heuzey 1997	This is not an intervention study ‐ it is a descriptive single group assessment psychological adjustment.
Leonard 1995	This is not an RCT it used a quasi experimental design to compare two approaches to education information about carrier testing for CF. The participants do not have CF nor do they have any higher risk of being a carrier than average.
Lindström 1994	This is not an intervention study ‐ it is a descriptive single group study and it is not wholly concerned with CF although some of the participants had CF.
Loader 1996	This was a study of attitudes and responses to population screening ‐ the participants did not have CF nor were they and higher risk of being a carrier. Of the group identified as carriers there was no comparison group and no psychological intervention was offered.
Magnussen 1992	This study was not wholly concerned with CF ‐ it was one of several lung diseases investigated. The intervention was not psychological nor did it have a psychosocial focus.
Phillipson 2000	This study had no comparison group and the intervention was not psychological nor did it have a psychosocial focus ‐ no psychosocial outcomes were included.
Pollitt 1997	This is not an intervention study it is a systematic review of the literature with respect to the cost‐effectiveness of population screening. There is no review of psychological interventions nor is there a psychosocial focus.
Pop Jordanova 2010	This is a study on 'Biofeedback', but there was no control group which did not receive the intervention.
Ralston 2008	This is a study on of smoking cessation counselling for parents, but CF parents were not a major subgroup of the study sample. No information about the number of participating CF parents is provided.
Ramström 2000	Although this study did not have a psychological intervention there was a psychosocial focus. It was however considered to be more concerned with service delivery.
Rault 2012	This is a study investigating a CF quality improvement program. It is a pilot study testing the applicability and effectiveness of Clinical Microsystems Approach to improve CF care in France. No control condition.
Rodrigue 2005	This study is a study on quality‐of‐life therapy for patients awaiting lung transplantation. The study included mostly patients with COPD (only 2 patients with CF).
Rozenfeld 2012	This is a study investigating Snoezeln in infants ages 0‐3 years with CF in a single centre without a comparator.
Stapleton 2001	This is a parallel RCT comparing the effectiveness of an educational programme with standard care for knowledge about nutrition. The approach was educational which is by defintion not eligible for this update of the review.
Stark 2002	Altough the article describes outcomes of a RCT study, only data for intervention group was collected and is provided for the outcome 'Calcium intake'.
Thompson 1990	This is not an intervention study ‐ it is a cross‐sectional, controlled, descriptive study of psychological adjustment in children with CF.
Thornton 1995	This is a study comparing three methods for conveying information about population screening. The participants do not have CF nor do they have any higher risk of being a carrier than average.
Trapp 1998	This ia parallel CCT of 2 interventions with a convenience control group sample to investigate whether self‐administration of drugs leads to greater knowledge about medications. The approach was educational which is by defintion not eligible for this update of the review.
Tullis 1995	This is not an intervention study ‐ it is an argument for a CF specific psychological measure.
Villari 1994	This is not an intervention study and it is not concerned with CF although some of the participants may have had CF. There is no psychosocial focus to this cross‐sectional case‐control study.
Ward 1999	This is not an intervention study ‐ it is a descriptive study comparing three groups with respect to energy expenditure.
Watson 2004	The previous ongoing study is now published as a randomized controlled trial of a new behavioral home‐based nutrition education program, "Eat Well with CF," in adults with cystic fibrosis. The approach was educational which is by defintion not eligible for this update of the review.
Watson 2006	The previous ongoing study is now published as a randomized controlled trial of a new behavioral home‐based nutrition education program, "Eat Well with CF," in adults with cystic fibrosis. The approach was educational which is by defintion not eligible for this update of the review.
Welkenhuysen 1996	This is not an intervention study ‐ it is a survey of attitudes towards population screening in adolescents. The participants do not have CF nor are they related to anyone with CF. They have no higher risk of being a carrier for CF then average.
Williams 1997	This intervention study does not have a comparison group.
Wolter 1997	This is not a psychological intervention albeit with a psychosocial focus. It was considered to be more concerned with service delivery.

CF: cystic fibrosis
TSD: Tay Sachs Disease