Goldbeck 2013.

Methods
Participants	151 CF patients aged 6 years or older recruited in 3 CF outpatient clinics. 300 patients from other CF centres receiving usual care and matched for age, sex and lung function were recruited as controls.
Interventions	Follow‐up period: 2 years. Patients in intervention group: program based on 'Individual Treatment Agreements' (ITA) between patient or caregiver and CF physician. ITA's may focus on medical, nutritional and psychotherapeutic measures.
Outcomes	Primary outcome Quality of care as assessed by the frequency of BMI and lung function measurements per year. Secondary outcomes Range of medical (mortality, lung function, BMI) and psychosocial (QoL, adherence, caregiver distress). Use of economic resources also assessed
Notes	Commenced clinically in May 2012. Co‐funded by the German Ministry of Health and the German CF‐association Mukoviszidose e.V.