Wainwright 2009.
Methods | RCT. Pilot study of an education and behavioural adaptation program (delivered via a mentorship system, telephone and IT tools) designed to enhance self‐management in adolescents. |
Participants | 46 adolescents aged 12‐19 with CF. |
Interventions | 3 groups: standard care (controls; N = 15); standard care + phone mentoring (N = 16); standard care, phone mentoring + IT‐tool (N = 15). Treatment lasted for 6 months with a further 6 months follow up, outcomes were re‐assessed at 3, 6, and 12 months. |
Outcomes |
Primary outcomes Stanford Self‐Efficacy Scale
QoL (measured with CFQ‐R) Secondary outcomes Spirometry Height and weight z scores Qualitative data from 10 intervention participants and mentors |
Notes | Contacted the leading author who provided the information that they are going to publish, but the data is not published, yet. |