Table 1.
Patient demographics and clinical history (retrospective study; total patients studied: 1848).
| Characteristic | Total | ||
| Gender (N=1841), n (%) |
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Female | 1217 (66.11) | |
| Age (years) at date joined PLMa (N=1848), median (IQRb); range | 56 (45-64); 18-89 | ||
| Country (N=1661), n (%) |
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United States | 1450 (87.30) | |
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UK | 66 (3.97) | |
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Other | 145 (8.73) | |
| Race (N=1496), n (%) |
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White | 1199 (80.15) | |
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Black or African American | 137 (9.16) | |
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Asian | 67 (4.48) | |
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Mixed race | 66 (4.41) | |
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Otherc | 27 (1.80) | |
| Education (N=713), n (%) |
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Postgraduate degree (master’s, doctorate, etc.) | 94 (13.18) | |
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College bachelor’s/undergraduate degree | 136 (19.07) | |
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Some college, but less than a bachelor’s/undergraduate degree | 334 (46.84) | |
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High-school graduate or GEDd (left school around age 18) | 124 (17.39) | |
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Some high school, but did not graduate (left school around age 16) | 23 (3.23) | |
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Eighth grade or less (left school around age 14) | 2 (0.28) | |
| Age (years) at first CKDe symptom (N=378), median (IQR) | 43 (28-54) | ||
| Age (years) at first CKD diagnosis (N=578), median (IQR) | 47 (33-56) | ||
| Time (months) between first symptom and diagnosis (N=371), median (IQR) | 0.0 (0.0-12.0) | ||
| Time (months) between first symptom and joining PLM (N=378), median (IQR) | 63.9 (28.9-9.3) | ||
| Time (months) between diagnosis and joining PLM (N=578), median (IQR) | 40.9 (14.5-102.3) | ||
| Medication (N=1369), n (%)f | |||
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Diabetes medication | 702 (51.28) | |
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Metforming | 481 (68.52) |
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Hypertension medication | 311 (22.72) | |
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Angiotensin-converting enzyme inhibitorg | 212 (68.17) |
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Antidepressant medication | 301 (21.99) | |
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Serotonin–norepinephrine reuptake inhibitorsg | 150 (49.83) |
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Lipid-modifying medication | 267 (19.50) | |
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Stating | 247 (92.51) |
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Immunosuppressants | 147 (10.74) | |
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Calcineurin inhibitorsg | 30 (20.41) |
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Anti-inflammatory and antirheumatic medication | 52 (3.80) | |
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Nonsteroidal anti-inflammatory drugsg | 48 (92.31) |
aPLM: PatientsLikeMe.
bIQR: interquartile range.
cIncludes American Indian or Alaska Native, or Native Hawaiian or other Pacific Islander.
dGED: General Educational Diploma.
eCKD: chronic kidney disease.
fPercent for medication class is percent of those reporting treatment (N=1369), whereas percent for top reported medication within treatment class is percent of treatment class.
gTop reported medication within the specified drug class.