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. Author manuscript; available in PMC: 2021 Jul 31.
Published in final edited form as: Res Dev Disabil. 2020 Jan 31;99:103578. doi: 10.1016/j.ridd.2020.103578

Table 5.

Categories and definitions for caregivers’ perceived obstacles to self-care. Caregivers could list up to five obstacles. The number of parents who reported facing at least one obstacle in the relevant category are listed below category names.

Code Description Example
Time Restraints (34 caregivers, 73.9%) Parent references lack of time or busy schedule. • Not enough time in a day
• Running out of time
• Too much housework
Lack of Resources (26 caregivers, 56.5%) Parent references a lack of resources such as financial resources, support from family, or child care. • Money and costs
• Lack of support from family
• Child care
Family Needs and Challenges (26 caregivers, 56.5%) Parent references the idea that children’s or partner’s needs come first, or difficulties associated with behavior of children. • Children and family needs come first
• Behavior of children
• Constant supervision
Exhaustion (14 caregivers, 30.4%) Parent references fatigue or exhaustion. • Too exhausted
• Tired
Health Issues (6 caregivers, 13.0%) Parent references medical issues. • Medical problems
• Physical health limitations
Mood (5 caregivers, 10.9%) Parent references stress or a lack of motivation. • Work stress
• Mood
Logistics (4 caregivers, 8.7%) Parent references logistics of strategies for self-care. • Live far away
• Friends not available
Pride (1 parent, 2.2%) Parent mentions pride. • Pride