Table 2.

Intercoder reliability for first cycle coding

CODE	Fleiss’ Kappa	Frequency	Confidence intervals
Anxiety (P)	0.95	27	0.94–0.96
Distress (P)	1.00	6	0.99–1.01
Fear (P)	0.69	11	0.68–0.70
Low mood (P)	0.72	8	0.72–0.73
Stress (P)	0.77	10	0.76–0.78
Boredom (P)	1.00	2	0.99–1.01
Overwhelmed (P)	0.85	16	0.84–0.86
Anger (P)	*	0	*
Positive emotions(P)	0.79	5	0.78–0.80
No/low impact (P)	1.00	2	0.99–1.01
Lonely (P)	*	0	*
Frustration (P)	*	0	*
Uncertainty (P)	0.48	4	0.47–0.49
Always together (P)	0.72	8	0.72–0.73
Food (P)	1.00	2	0.99–1.01
Concern for child’s future (P)	0.77	10	0.76–0.78
Loss of specialist support (P)	1.00	4	0.99–1.01
Total responsibility (P)	0.48	4	0.47–0.49
Communication (P)	*	0	*
Self-efficacy (P)	0.64	6	0.63–0.65
Competing responsibilities (P)	0.84	7	0.84–0.85
Changes in routine (P)	1.00	2	0.99–1.01
Finance (P)	− 0.01	1	− 0.02 to 0.00
Loss of community (P)	*	0	*
School input (P)	0.66	3	0.65–0.66
Under pressure (P)	1.00	2	0.99–1.01
Anxiety (C)	0.90	34	0.89–0.91
Fear (C)	0.72	8	0.72–0.73
No/low impact (C)	0.64	6	0.63–0.65
Stress (C)	0.84	7	0.84–0.85
Low mood (C)	1.00	4	0.99–1.01
Frustration (C)	0.79	5	0.65–0.66
Distress (C)	1.00	10	0.99–1.01
Confusion (C)	1.00	4	0.99–1.01
Challenging behaviour (C)	0.76	22	0.75–0.76
Positive emotions (C)	1.00	6	0.99–1.01
Boredom (C)	1.00	4	0.99–1.01
Behaviour change (C)	0.63	9	0.62–0.64
Sleep (C)	− 0.04	3	− 0.05 to − 0.03
Change in routine (C)	0.72	25	0.71–0.73
Awareness (C)	1.00	6	0.99–1.01
Understanding (C)	0.92	15	0.91–0.93
Friends (C)	1.00	6	0.99–1.01
Food (C)	*	0	*
Communication (C)	− 0.02	2	− 0.03 to − 0.01
Motivation (C)	− 0.01	1	− 0.02 to 0.00
Loss of community (C)	0.36	5	0.35–0.37
School input (C)	0.66	3	0.65–0.66

*Kappa was not calculated because the code was not used in the reliability checking sample on n = 43. Neither rater applying it to any participant implies perfect agreement