Table 5.
Interview guide for the qualitative open and exploratory study relative to caregiver’s experiences during the Ensemble programme
| Introduction | |
| Acknowledgments and facilitator presentation: First, I would like to thank you for accepting this interview. It will allow us to explore your experience during the Ensemble programme. I would like you to share with me your experience, feelings, advantages and disadvantages that occurred during your participation in this programme. I am, Name and Surname. I am speaking as a researcher. I was not involved in the Ensemble project until now. I work at La Source, School of nursing, University of Applied sciences and Arts Western Switzerland, in Lausanne. I am very pleased to meet you this morning/afternoon. Purpose of the interview: As the project investigators have already told you, the purpose of this interview is to understand, in a qualitative way, your Ensemble programme experience. Interview procedure: The interview should last about 1 hour maximum. Confidentiality: I guarantee you that the content of our exchange will only be used for scientific research purposes and that your identity will remain confidential. The analyses will focus on the content of this interview and the results of the questionnaires that you have filled in during the first step of the project. There will be no way to identify your personal data is coded. Audio recording: If it is ok with you, as written in the consent sheet/form, I would like to record the interview, in order to make our note-taking easier and so allow me to focus on our conversation. The recordings will not be in any case diffused nor shared outside the project’s team. Participant’s comfort: Is everything ok for you? Do you have any question before we start? | |
| Interview | Objectives |
| Interview opening question: Can you describe me your experience during the Ensemble programme? Questions to ask in order to sustain and revive the speech of the participant: How would you qualify the help that you have received during the Ensemble programme? What advantages for you and your relative, have you identified in this programme? What disadvantages for you and your relative, have you identified in this programme? Which contents/exercises have helped you to better manage your situation or your caregiver role? On the contrary, which contents/exercises have you found pointless? What do you think of the term « caregiver »? Has the Ensemble programme eventually contributed to better assimilate this notion or on the contrary, to reject it? Explain. What remarks or suggestions would you give to improve the support that you have received? Is your situation different after the intervention compared with your situation before? Yes/No; How different is your situation? If Yes, do you attribute this difference to your participation in the Ensemble programme? Which elements of the programme seem to have played a part in this change of your situation/life? Which elements of the programme seem to have helped to initiate that change? Is your relative health state different after this intervention (compared with what it was before)? Yes/No; How different is the state of health of your relative? Do you think that this improvement/change is related to the support that you have received? Yes/No; If Yes, how do you explain this relation between improvement/change and the Ensemble programme Which impacts have you noticed in your quality of life? Could you tell me a major situation that you might have experienced during the Ensemble programme? What was useful during the accompaniment? What more would you have liked? What do you considerate as not enough nor not useful? How would you qualify the relationship that you have had with the intervention provider of the Ensemble programme? |
To understand the Ensemble programme experience of the participant in general. |
| To identify: (1) the eventual benefits and disadvantages of the Ensemble programme for the caregiver and his/her relative, (2) the contribution of the contents and practical exercises of the programme in the capacity to manage painful emotions and resolve difficulties during the programme, or in the future, (3) the contribution of the programme on the empowerment in the caregiving role or for the person independently of this role, (4) indications in order to improve the programme. To observe the eventual process of change (quality of life, situation…) that the programme might have generated. To get concrete illustrations of these changes and information on the accompaniment of the intervention provider. | |
| Conclusion | |
| In the end, what « word » would you choose to qualify/describe your experience as a participant in this programme? Would you like to add anything? | To propose a review and offer possibility to add anything. |