Table 1.
Characteristics | Levels |
---|---|
1. Chance of having a genetic condition | 5 out of 100 |
10 out of 100 | |
30 out of 100 | |
50 out of 100 | |
75 out of 100 | |
2. Severity of the condition | Mild |
Moderate | |
Severe | |
3. Availability of preventive or treatment options | No options are available |
Treatments to improve the condition are available | |
Treatments to cure or prevent the condition are available | |
4. Improving the process of medical care | Not likely |
Somewhat likely | |
Very likely | |
5. Cost of testing to you (% of annual household income)a,b | 0.20% |
1% | |
3% | |
5% | |
6. Disclosure of test results to others | Not required |
May be required to a life insurer | |
7. Disclosure of secondary findings to you | No |
Yes |
aIn choice tasks, percentages were pivoted based on individual’s reported annual household income. Thus, participants were given an actual cost figure (in Australian dollars) that was relative to their income.
bMean cost after incorporating income adjustments, across the three surveys, was $1840 (SD = $2080). The median cost was $900 (interquartile range = $300 to $2500).