Table 7.
Impact on the family of a late onset GM2 patient
| Impact on the family of a late onset GM2 patient | |||
|---|---|---|---|
| Question | Possible Answer | Numerical value | Converted Value (For composite scale) |
| I don’t have much time left over for other family members after caring for myself | Strongly Agree | 3 | 1 |
| Agree | 2 | 0.667 | |
| Disagree | 1 | 0.333 | |
| Strongly Disagree | 0 | 0 | |
| Our family gives up things because of my illness | Strongly Agree | 3 | 1 |
| Agree | 2 | 0.667 | |
| Disagree | 1 | 0.333 | |
| Strongly Disagree | 0 | 0 | |
| I worry about what will happen in the future | Strongly Agree | 3 | 1 |
| Agree | 2 | 0.667 | |
| Disagree | 1 | 0.333 | |
| Strongly Disagree | 0 | 0 | |
| Because of what we have shared we are a closer family | Strongly Agree | 0 | 0 |
| Agree | 1 | 0.333 | |
| Disagree | 2 | 0.667 | |
| Strongly Disagree | 3 | 1 | |
| Total Score | 12 | ||