Table 1. Detailed result of the survey.
Please note all responses may not add up to exactly 100% because many patients chose not to answer or chose multiple answers in certain questions.
| Serial No. | Items | Result1 |
| I | Patient Characteristic | |
| Ia | Stage 1 | 13.63% |
| Ib | Stage 2 | 13.63% |
| Ic | Stage 3 | 12.7% |
| Id | Stage 4 | 16.36% |
| Ie | Breast cancer survivor | 14.5% |
| If | Disease stage unspecified | 29.18% |
| II | Current understanding of your condition | |
| 1 | How do you describe your current knowledge about your condition? | |
| 1a | Adequate | 90.9% |
| 1b | Not adequate | 6.4% |
| 1c | Not sure | 2.7% |
| 2 | Answer question related to your condition. | |
| 2a | Able to record diagnosis | 61.8% |
| 2b | Current treatment | 85% |
| 2c | Stage | 55.45% |
| 2d | Aware of prognosis | |
| 2d1. | Good | 30.9% |
| 2d2. | Bad | 8.19% |
| 2d3. | Not aware | 59% |
| 3 | Would you like to be more educated? | |
| 3a | Yes | 32.7% |
| 3b | No | 64.5% |
| 4 | Which of the following components you think need more education about? | |
| 4a | Risk factors and genetics | 11.8% |
| 4b | Prognosis | 26.3% |
| 4c | Complication | 24.5% |
| 4d | Treatment options and side- effects | 29% |
| III | Psychological and social aspects | |
| 5 | Do you have any of the following as result of the condition and/ or treatment? | |
| 5a | Anxiety | 44.5% |
| 5b | Fear | 27.3% |
| 5c | Uncertainty | 27.3% |
| 5d | Sadness | 21.8% |
| 5e | Effect on personal / family life | 30.9% |
| 5f | Effect on work performance | 23.6% |
| 5g | Other issues | 1.8% |
| 6 | Do you want your oncologist to initiate discussions regarding above issues? | |
| 6a | Yes | 22.73% |
| 6b | No | 77.27% |
| 7 | What would you want your oncologist to do if you face such issues? | |
| 7a | Manage them | 57% |
| 7b | Let your PCP manage | 10% |
| 7c | Referral to psychotherapist | 9.01% |
| 7d | Referral to social worker | 11.8% |
| 7e | Referral to nurse navigator | 13.6% |
| IV | Physical symptoms related to your condition | |
| 8 | Do you currently have following symptoms related to your condition or treatment? | |
| 8a | Pain | 25.45% |
| 8b | Fatigue | 41.8% |
| 8c | Nausea | 18.18% |
| 8d | Vomiting | 4.54% |
| 8e | Other | 3.63% |
| 9 | Do you think there is a need to pay more attention to these symptoms in subsequent visits? | |
| 9a | Yes | 25.45% |
| 9b | No | 67.27% |
| V | End of life care planning | |
| 10 | Do you think end of life care discussions with your oncologist is an integral component of your overall care? | |
| 10a | Response from patients in adjuvant treatment group (early to advanced stage disease) | |
| 10ai | Yes | 34.09% |
| 10aii | No | 65.91% |
| 10b | Response from patient with metastatic disease | |
| 10bi | Yes | 44.5% |
| 10bii | No | 55.5% |
| 10c | Response from breast cancer survivors | |
| 10ci | Yes | 43.75% |
| 10cii | No | 56.25% |
| 11 | Have you ever had a discussion about end of life care planning with your oncologist? | |
| 11a | Yes, and within 12 months | 4.5% |
| 11b | Yes, but not within 12 months | 10.9% |
| 11c | Never | 89% |
| 12 | Please select components (multiple) of the end of life care planning you think need to have discussion with your oncologist? | |
| 12a | Prognosis | 27.27% |
| 12b | Life expectancy | 26.36% |
| 12c | Effect of treatment on quality of life | 22.7% |
| 12d | Your preference on extending survival vs quality of life | 22.7% |
| 12e | Palliative care | 9% |
| 12f | Hospice | 10.9% |
| 12g | Advance directive | 11.8% |
| 12h | Involvement of family in decision making | 13.6% |
| 13 | When would you want to have these discussions? | |
| 13a | Response from patients in adjuvant treatment group (early to advanced stage disease) | |
| 13ai | At diagnosis/ initiation of treatment | 6.8% |
| 13aii | When oncologist think it’s appropriate | 72.7% |
| 13aiii | When you request it | 15.9% |
| 13aiv | When it may affect treatment plan | 11.3% |
| 13b | Response from patients with metastatic disease | |
| 13bi | At diagnosis/ initiation of treatment | 16.6% |
| 13bii | When oncologist think it’s appropriate | 44.44% |
| 13biii | When you request it | 44.44% |
| 13biv | When it may affect treatment plan | 11.11% |
| 13c | Response from breast cancer survivor | |
| 13ci | At diagnosis/ initiation of treatment | 12.5% |
| 13cii | When oncologist think it’s appropriate | 50% |
| 13ciii | When you request it | 12.5% |
| 13civ | When it may affect treatment plan | 25% |
| 14 | How frequently? | |
| 14a | Once | 40% |
| 14b | At regular interval mutually decided by patient and oncologist | 32.7% |
| 14c | Every appointment | 5.4% |