Table 1.
Clinical characteristics of 29 participating patients.
| Total group (%)a | Dutch patients (n = 17) | British patients (n = 12) | |||||
|---|---|---|---|---|---|---|---|
| Sex | Male | 10 | (35%) | 5 | (29%) | 5 | (42%) |
| Female | 19 | (65%) | 12 | (71%) | 7 | (59%) | |
| Median age in years at the time of questionnaires (IQR)b | 43 | (36–55) | 44 | (36–55) | 41 | (32–56) | |
| Median age in years at the time of diagnosis (IQR)c | 38 | (30–48) | 38 | (30–48) | 37 | (28–50) | |
| Tumour localisation | Abdominal wall | 2 | (7%) | 2 | (12%) | 0 | (0%) |
| Intra-abdominal | 10 | (35%) | 8 | (47%) | 2 | (17%) | |
| Extremity/girdles/chest wall | 15 | (52%) | 6 | (35%) | 9 | (75%) | |
| Head/neck/intrathoracic | 1 | (3%) | 1 | (6%) | 0 | (0%) | |
| Missing value | 1 | (3%) | 0 | (0%) | 1 | (6%) | |
| Recurrent disease | Yes | 6 | (21%) | 2 | (12%) | 4 | (33%) |
| No | 21 | (72%) | 15 | (88% | 6 | (50%) | |
| Missing value | 2 | (7%) | 0 | (0%) | 2 | (17%) | |
| Received treatments (some patients gave multiple answers) | Wait and see | 21 | 12 | 9 | |||
| Surgery | 14 | 8 | 6 | ||||
| Radiotherapy | 4 | 1 | 3 | ||||
| Chemotherapy | 5 | 1 | 4 | ||||
| Nonsteroidal anti-inflammatory drugs | 8 | 1 | 7 | ||||
| Hormonal treatment | 7 | 2 | 5 | ||||
| Pain management | 9 | 0 | 9 | ||||
| Physiotherapy | 7 | 3 | 4 | ||||
| Occupational therapy | 2 | 1 | 1 | ||||
| Currently receiving any active form of treatment | Yes | 9 | (31%) | 0 | (0%) | 9 | (75%) |
| No | 19 | (66%) | 17 | (100%) | 2 | (17%) | |
| Missing value | 1 | (3%) | 0 | (0%) | 1 | (8%) | |
| Comorbidity (some patients gave multiple answers) | No | 11 | 6 | 5 | |||
| Arthritis or long-term joint problem | 3 | 2 | 1 | ||||
| Asthma or long-term chest problem | 4 | 2 | 2 | ||||
| Diabetes | 1 | 1 | 0 | ||||
| High blood pressure | 1 | 0 | 1 | ||||
| Kidney or liver disease | 1 | 1 | 0 | ||||
| Long-term back problem | 6 | 3 | 3 | ||||
| Long-term mental health problem | 2 | 2 | 0 | ||||
| Long-term neurological problem | 1 | 1 | 0 | ||||
| Physical disability | 2 | 1 | 1 | ||||
| Othersd | 3 | 2 | 1 | ||||
| Missing value | 2 | 2 | 0 | ||||
aPercentages may not add up to 100% due to rounding up of decimals. bAnswered by n = 21 participating patients. cAnswered by n = 29 participating patients. dIncluding digestive problems, coeliac disease lactose intolerance, and iron deficiency.