Table 2.
Storyteller motivations, barriers, and disclosure of protected health information (N=137).
| Responses | Value | ||
| Storyteller motivations, n (%) | |||
|
|
To educate the public about living donation | 130 (94.9) | |
|
|
To spread awareness and help others | 110 (80.3) | |
|
|
To make a difference in living donor recipient’s and donor’s lives | 109 (79.6) | |
|
|
To help more people become living donors | 107 (78.1) | |
|
|
To dispel myths about living donation | 104 (75.9) | |
| User experience, n (%) | |||
|
|
Storytellers who found filming a story difficult | 34 (24.8) | |
|
|
Storytellers who found filming their story emotionally difficult | 29 (21.2) | |
| Disclosure of PHIa, n (%)b | |||
|
|
PHI about themselves | 78 (57.8) | |
|
|
|
Last name | 55 (40.7) |
|
|
|
Specific transplant center | 24 (17.8) |
|
|
|
Transplant or donation date, month, and year | 25 (18.5) |
|
|
|
Geographic specifics of location | 11 (8.1) |
|
|
PHI about another | 56 (41.5) | |
|
|
|
Last name | 30 (22.2) |
|
|
|
Specific transplant center | 15 (11.1) |
|
|
|
Transplant or donation date, month, and year | 13 (9.6) |
|
|
|
Geographic specifics of location | 4 (2.9) |
aPHI: protected health information.
bDisclosure of PHI obtained from Ethical Review of Storytellers who completed the storyteller postsurvey (n=135).