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. 2020 Jul 21;4(7):e17441. doi: 10.2196/17441

Table 4.

Content shared by potential donors and kidney patients around open-ended prompts.

Prompts by story guide Examples of storytelling content shared
Exploring donation

I first considered donating a kidney... “When our family found out that my niece Marie was in kidney failure. She was fairly young, she was about 13-14. She was about to start junior high and she was about start dialysis. That is when I first started to think about being a donor.” (Monica)

Initially my attitude toward living kidney donation was... “I was little, I was a afraid at first. I didn't know what it entailed and until I read about it more. I have two kidneys and I have one to spare.” (Kurt)

Once I learned more about living donation, I considered becoming a living donor because... “Once I learned about kidney donation, I considered to be a donor because my wife had kidney failure.” (Kurt)
In need of a kidney

I could get a kidney from a living donor. So far...(tell what you have done or plan to do to find a donor) “It is hard for me to find a kidney because; I need a B-, live kidney donor. I’ve done a lot of social outreach. I've made shirts, made some pamphlets, and gone on social media [to find a donor].” (Kabir)

I started having these symptoms... I was diagnosed with (explain prognosis), (X) months/years ago “I was having high blood pressure and slowly I was feeling fatigue and I would always have this headache. I was not aware of what was going on with my health. I thought I was just too active. But, slowly the disease took over me and I had stage 4 kidney failure.” (Kabir)

To stay alive, I have to go for dialysis, which is... (briefly describe what it is, how often you go, your new quality of life) “For my dialysis, peritoneal dialysis every day. Most people do couple of hours every day but I do about 12 and a half hours every day [...]” (Kabir)