Table 4.
Prompts by story guide | Examples of storytelling content shared | |
Exploring donation | ||
|
I first considered donating a kidney... | “When our family found out that my niece Marie was in kidney failure. She was fairly young, she was about 13-14. She was about to start junior high and she was about start dialysis. That is when I first started to think about being a donor.” (Monica) |
|
Initially my attitude toward living kidney donation was... | “I was little, I was a afraid at first. I didn't know what it entailed and until I read about it more. I have two kidneys and I have one to spare.” (Kurt) |
|
Once I learned more about living donation, I considered becoming a living donor because... | “Once I learned about kidney donation, I considered to be a donor because my wife had kidney failure.” (Kurt) |
In need of a kidney | ||
|
I could get a kidney from a living donor. So far...(tell what you have done or plan to do to find a donor) | “It is hard for me to find a kidney because; I need a B-, live kidney donor. I’ve done a lot of social outreach. I've made shirts, made some pamphlets, and gone on social media [to find a donor].” (Kabir) |
|
I started having these symptoms... I was diagnosed with (explain prognosis), (X) months/years ago | “I was having high blood pressure and slowly I was feeling fatigue and I would always have this headache. I was not aware of what was going on with my health. I thought I was just too active. But, slowly the disease took over me and I had stage 4 kidney failure.” (Kabir) |
|
To stay alive, I have to go for dialysis, which is... (briefly describe what it is, how often you go, your new quality of life) | “For my dialysis, peritoneal dialysis every day. Most people do couple of hours every day but I do about 12 and a half hours every day [...]” (Kabir) |