Table A1.
Characteristics of the QOLIBRI items.
| General Population Sample | ||||||||
|---|---|---|---|---|---|---|---|---|
| UK | NL | UK | NL | UK | NL | UK | NL | |
| QOLIBRI Items | Mean ± SD | Skewness | Ceiling (%) | % “Not at All” and “Slightly” | ||||
| Cognition | 71.1 ± 24.4 | 78.4 ± 18.1 | −0.8 | −0.9 | 15.1 | 16.8 | - | - |
| Concentrate | 3.7 ± 1.2 | 4.0 ± 0.9 | −0.6 | −1 | 30.4 | 34.5 | 17 | 7 |
| Express yourself | 3.8 ± 1.1 | 4.1 ± 0.9 | −0.8 | −1.1 | 35.2 | 38 | 13 | 6 |
| Memory | 3.7 ± 1.1 | 4.1 ± 0.9 | −0.6 | −1 | 26.8 | 33.8 | 15 | 6 |
| Plan and problem solve | 3.9 ± 1.1 | 4.2 ± 0.9 | −0.8 | −1.2 | 35 | 41 | 12 | 5 |
| Decisions | 3.9 ± 1.1 | 4.1 ± 0.9 | −0.9 | −1.1 | 38.6 | 39 | 11 | 5 |
| Navigate | 4.1 ± 1.1 | 4.2 ± 0.9 | −1 | −1.2 | 46.2 | 44.7 | 10 | 4 |
| Speed of thinking | 3.9 ± 1.1 | 4.2 ± 0.9 | −0.8 | −1.2 | 32.7 | 39.6 | 12 | 5 |
| Self | 54.8 ± 27.4 | 68.6 ± 20.3 | −0.2 | −0.7 | 6.2 | 6.4 | - | - |
| Energy | 3.2 ± 1.2 | 3.5 ± 1.0 | −0.3 | −0.6 | 13 | 15.1 | 27 | 15 |
| Motivation | 3.2 ± 1.2 | 3.7 ± 1.0 | −0.3 | −0.7 | 15.4 | 21.2 | 26 | 11 |
| Self-esteem | 3.2 ± 1.3 | 3.8 ± 1.0 | −0.2 | −0.8 | 17.2 | 28.2 | 30 | 11 |
| Appearance | 3.1 ± 1.2 | 3.8 ± 1.0 | −0.2 | −0.8 | 13.4 | 20.2 | 31 | 10 |
| Achievements | 3.2 ± 1.2 | 3.8 ± 1.0 | −0.2 | −0.8 | 16.2 | 25.8 | 29 | 11 |
| Self-perception | 3.2 ± 1.2 | 3.8 ± 1.0 | −0.3 | −0.9 | 14.8 | 21.7 | 28 | 11 |
| Future | 3.2 ± 1.2 | 3.7 ± 1.0 | −0.2 | −0.8 | 15.4 | 21.5 | 29 | 12 |
| Daily life and autonomy | 66.5 ± 26.2 | 75.5 ± 19.4 | −0.6 | −0.8 | 11.9 | 13.2 | - | - |
| Independence | 3.7 ± 1.2 | 4.1 ± 1.0 | −0.7 | −1 | 33.3 | 38.4 | 16 | 7 |
| Get out and about | 3.8 ± 1.2 | 4.2 ± 0.9 | −0.8 | −1.3 | 40.2 | 45.3 | 16 | 5 |
| Domestic activities | 3.9 ± 1.2 | 4.1 ± 1.0 | −0.8 | −1.1 | 40.7 | 42.5 | 15 | 7 |
| Run personal finances | 3.8 ± 1.2 | 4.2 ± 0.9 | −0.8 | −1.2 | 36.7 | 43.5 | 16 | 6 |
| Participation work | 3.5 ± 1.3 | 3.8 ± 1.2 | −0.5 | −0.9 | 27.4 | 30.6 | 22 | 15 |
| Social and leisure activities | 3.3 ± 1.3 | 3.8 ± 1.1 | −0.3 | −0.8 | 21.5 | 26.9 | 28 | 13 |
| In charge of life | 3.6 ± 1.2 | 4.0 ± 0.9 | −0.6 | −1 | 28.8 | 35 | 18 | 7 |
| Social relationships | 63.9 ± 26.0 | 74.0 ± 19.6 | −0.5 | −0.8 | 11 | 11.5 | - | - |
| Affection towards others | 3.8 ± 1.2 | 4.2 ± 0.9 | −0.7 | −1.2 | 34 | 43.9 | 15 | 6 |
| Family | 3.8 ± 1.2 | 4.0 ± 1.0 | −0.7 | −1 | 33.8 | 35.9 | 15 | 8 |
| Friends | 3.6 ± 1.2 | 4.0 ± 0.9 | −0.6 | −1.1 | 28.8 | 34.9 | 18 | 7 |
| Partner | 3.7 ± 1.3 | 4.0 ± 1.1 | −0.7 | −1.1 | 37.1 | 43 | 19 | 10 |
| Sex life | 3.0 ± 1.4 | 3.5 ± 1.2 | −0.1 | −0.7 | 20.6 | 23.9 | 35 | 19 |
| Attitudes of others | 3.4 ± 1.1 | 3.9 ± 0.9 | −0.4 | −0.9 | 19.7 | 26.4 | 19 | 7 |
| Emotions | 59.4 ± 28.0 | 68.4 ± 24.4 | −0.2 | −0.4 | 11.6 | 15.4 | - | - |
| Feel lonely | 3.5 ± 1.3 | 3.5 ± 1.3 | −0.4 | −0.3 | 32.1 | 29.2 | 24 | 25 |
| Feel bored | 3.4 ± 1.3 | 3.6 ± 1.2 | −0.3 | −0.5 | 26.2 | 28.2 | 26 | 20 |
| Feel anxious | 3.3 ± 1.4 | 3.7 ± 1.2 | −0.2 | −0.6 | 25.1 | 35.2 | 32 | 15 |
| Feel sad | 3.3 ± 1.4 | 3.7 ± 1.3 | −0.2 | −0.6 | 27 | 35.5 | 31 | 18 |
| Feel angry | 3.6 ± 1.3 | 3.9 ± 1.2 | −0.5 | −0.8 | 34.7 | 41.6 | 22 | 13 |
| Physical problems | 66.8 ± 27.0 | 70.0 ± 23.5 | −0.5 | −0.5 | 15.6 | 15.3 | - | - |
| Slow/clumsiness | 3.8 ± 1.2 | 3.9 ± 1.1 | −0.7 | −0.7 | 40.8 | 38.8 | 17 | 14 |
| Effects injuries | 3.9 ± 1.2 | 3.9 ± 1.2 | −0.8 | −0.9 | 46.4 | 47.2 | 15 | 16 |
| Pain | 3.5 ± 1.3 | 3.6 ± 1.2 | −0.4 | −0.4 | 28.6 | 28.8 | 23 | 22 |
| See/hear | 4.0 ± 1.2 | 4.0 ± 1.1 | −0.9 | −0.8 | 46 | 40.1 | 14 | 11 |
| Effects health problems | 3.5 ± 1.3 | 3.7 ± 1.2 | −0.4 | −0.5 | 28.8 | 31.1 | 23 | 19 |
| QOLIBRI total score | 63.8 ± 20.6 | 72.8 ± 16.6 | −0.3 | −0.5 | 1.6 | 1.9 | - | - |
Note: Mean: mean value; SD: standard deviation; ceiling effects are expressed as a percentage and represent the proportion of individuals who chose the response category “very” on the QOLIBRI items or reached the maximum of 100 on the respective QOLIBRI scales.