| Indoor activities |
I like talking to my daughter, finding out what she wants to do and meeting her needs. I like to see her play with her friends and laugh because she is lovely and charismatic. (Caregiver 037) I love being with my family; I'm a full-time mom. I would like to go to the gym and to be a woman like others, but I do not have time. (Caregiver 043) In my spare time I am a musician. (Caregiver 041) |
I have two kittens at home. I take care of them. At home, I help my mother cleaning and ironing clothes and shirts. Every day I take care of my hygiene and make my bed. (Minor with PWS 002) Mom does not want me to go to the kitchen. I do puzzles or embroidery. I watch Disney cartoons. I read the newspapers. When I am sad or angry, I try to eat. I often quarrel with my mom. My dad says nothing because he makes me more upset. (Adult with PWS 003) I watch television, I listen to music and I pray every day. Every morning I make the beds, and I set the table while my parents are cooking. (Adult with PWS 012) |
| Outdoor activities |
I refresh myself by being alone. I do yoga, I study Japanese, I sing in a choir. I have not given up my passions. (Caregiver 074) As the years went by, I dedicated more and more time to my son. So, I gave up my passions to devote myself to him. I still cultivate a passion for sport, which I rarely practice. I love reading at night. (Caregiver 019) I would like to swim, to go for walks by the sea and around the lake. I would like to have no responsibilities, schedules or limitations; I would like to be a little carefree. (Caregiver 012) |
I do athletics, especially playing football and swimming. I go for walks with others, alone or with my dog. I like going to see my favourite football team play at the stadium. I play videogames and watch movies. I like going to see my favourite animal, the dolphin, at the dolphinarium. (Adult with PWS 011) I try to help people in trouble. I do a lot of activities such as swimming pool, occupational therapy and kinesiotherapy because I have had back surgery twice for severe scoliosis. (Minor with PWS 006) I like going out, shopping, swimming, listening to music, drawing, cutting and pasting, making figurines and making collages. (Adult with PWS 027) |
| Relationships |
Some people have tried to understand the condition, but others have disappeared. The syndrome helped me to choose from among the people around me. (Caregiver 075) My father and my mother were as sorry and as much in disbelief as I was, and they were unable to get over it. My sister and friends supported me. My husband shut himself off, and he is present and absent at the same time, except for practical things. (Caregiver 004) The grandparents have been fantastic, available and always ready to help us. Our friends did not understand our situation, and our roads soon split: your social life changes radically. (Caregiver 066) |
My parents are the closest and most valuable people. They are strict but affectionate and loving. I am always looking for contact with them, even if I have made them angry. My brothers are also close to me. One of them is playful, and the other one is protective, a little severe. With them, I am calm and feel protected. (Adult with PWS 038) At school, I have tried to get closer to others, but they do not like to be with me and do not want me. My professors love me; however, with some of them, I feel that I am different and not good. As for my parents, my biological mother did not love me, and my father hated me; my new parents love me so much. (Adult with PWS 014) I love my family. They do everything they can to make me happy. (Minor with PWS 008) |
