. Author manuscript; available in PMC: 2021 Jun 7.

Published in final edited form as: Am J Med Genet C Semin Med Genet. 2020 Jun 7;184(2):428–443. doi: 10.1002/ajmg.c.31807

TABLE 2.

Data collected at study visits for the eXtraordinarY Babies Study

Demographic/family information	Race/ethnicity Family history (medical, learning, psychological, education levels, work) Household and family factors (siblings, birth order, household members, location, language exposure) Socioeconomic status Parental height/weight measurement Brief parental cognitive, language, executive function skills Parenting stress/attachment/quality of life
Development/behavior assessments	Cognition Language skills Motor skills Social development and play Adaptive functioning Eyetracking: Early social cognition Pre-academic skills (3+ years) Behavioral questionnaires Temperament scales Therapy/intervention/daycare history Developmental/autism screening measures
Medical data	Prenatal, birth, medical, and surgical history Growth parameters Physical examination Body composition (PeaPOD, BodPOD) Laboratory studies (hormonal profiles, etc.)
Biological samples for biorepository	Blood processed for DNA, RNA, serum, plasma Urine Stool