Table 1.
Participant Characteristics
| Demographics | Frequency | Percent |
|---|---|---|
| Age | ||
| 20–29 | 3 | 10 |
| 30–39 | 6 | 20 |
| 40–49 | 5 | 17 |
| 50–59 | 9 | 30 |
| 60 or older | 7 | 23 |
| Sex | ||
| Female | 22 | 73 |
| Male | 8 | 27 |
| Race | ||
| Black or African American | 15 | 50 |
| White | 15 | 50 |
| Ethnicity | ||
| Hispanic or Latino | 1 | 3 |
| Not Hispanic or Latino | 29 | 97 |
| Education | ||
| Less than high school | 1 | 3 |
| High school | 8 | 27 |
| Some college | 7 | 23 |
| Associate’s degree | 2 | 7 |
| Bachelor’s degree | 4 | 13 |
| Master’s degree | 5 | 17 |
| Doctoral degree | 2 | 7 |
| Other | 1 | 3 |
| Employment1 | ||
| Employed part-time | 7 | 23 |
| Employed full-time | 11 | 37 |
| Self-employed | 1 | 3 |
| Retired | 6 | 20 |
| Unemployed | 4 | 13 |
| Other | 1 | 3 |
| Number of studies participated in | ||
| 1–5 | 14 | 47 |
| 6–10 | 6 | 20 |
| 11–15 | 4 | 13 |
| 15 or more | 6 | 20 |
| Types of studies participated in2 | ||
| Clinical trial | 13 | 43 |
| Survey | 23 | 77 |
| Focus group | 21 | 70 |
| Interview study | 20 | 67 |
| Biobank | 10 | 33 |
| Observational | 6 | 20 |
| Studies participated in involved sharing | ||
| Yes | 22 | 73 |
| No | 5 | 17 |
| Do not remember | 3 | 10 |
| Sensitivity of studies participated in2 | ||
| Protected health information | 28 | 93 |
| Drug/substance | 7 | 23 |
| Sexual history | 11 | 37 |
| Illegal behavior | 1 | 3 |
| Financial history | 7 | 23 |
| Other | 1 | 3 |
| Prefer not to answer | 2 | 7 |
| Motivation for participating in research2 | ||
| Advance research | 24 | 80 |
| Benefit society | 17 | 57 |
| Access to latest treatments | 14 | 47 |
| I enjoy it | 18 | 60 |
| Payments | 24 | 80 |
| Family suffered from disease | 2 | 7 |
1.
Percentages were rounded off and thus do not total 100%.
2.
Participants were asked to check all that applied, so percentages do not total 100%.